Familial diagnostic experiences in paediatric oncology
Familial diagnostic experiences in paediatric oncology
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DOI：
10.1038/bjc.2014.516
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发表时间：
2015-01-06
影响因子：
8.8
通讯作者：
Cohn, R. J.
中科院分区：
文献类型：
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作者：
Evans, N. T.;Wakefield, C. E.;Cohn, R. J.
背景：诊断延迟在儿科肿瘤学中可能不具有显著的预后意义，但心理影响仍未得到充分研究。方法：对儿童癌症幸存者(n=19)、父母(n=78)和兄弟姐妹(n=15)进行了访谈，探索诊断经验。结果：中位诊断时间为3周。参与者描述了快速诊断(28.9%)加上延迟的评估间隔(即与父母或患者相关的诊断延迟；40.0%)和诊断间隔(即与医疗保健相关的延迟；46.7%)。经历延误的家庭描述了内疚和愤怒以及对家庭和临床医生关系的有害影响。一些人认为延误会影响治疗和预后。结论：诊断经验的影响可能是相当大的。
Background: Diagnostic delays may not have significant prognostic implications in paediatric oncology, but psychological impacts remain understudied.Methods: Interviews exploring diagnostic experiences were conducted with childhood cancer survivors (n = 19), parents (n = 78) and siblings (n = 15).Results: Median diagnostic time was 3 weeks. Participants described a mixture of rapid diagnoses (28.9%), plus delayed appraisal intervals (that is, parent-or patient-associated diagnostic delays; 40.0%) and diagnostic intervals (that is, healthcare-associated delays; 46.7%). Families experiencing delays described guilt and anger and deleterious impacts on the family-clinician relationship. Some believed delays impacted on treatment and prognosis.Conclusions: The effect of the diagnostic experience can be considerable.