Involving the public through participatory visual research methods
Involving the public through participatory visual research methods
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DOI：
10.1111/j.1369-7625.2009.00560.x
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发表时间：
2009-09-01
影响因子：
3.2
通讯作者：
Kolb, Bettina
中科院分区：
文献类型：
--
作者：
Lorenz, Laura S.;Kolb, Bettina
目标 展示向患者和社区居民提供摄像头如何有效地让公众了解消费者、社区和卫生系统的问题和优势。 背景 卫生保健机构和系统可能会寻求纳入消费者对健康和卫生保健的看法，但在让最弱势群体参与方面面临着挑战，无论是残疾人还是生活在自上而下的政策方法为常态的社会中社会经济地位较低的人。 方法 借鉴摩洛哥和美国使用照片启发和照片语音的研究实例，作者探讨了与在不同文化和政治背景下使用参与式视觉方法相关的规划、数据分析、伦理问题和行动问题。结果消费者生成的视觉数据可能令人惊讶，并且可以识别使用其他方式收集的数据中遗漏的卫生系统问题和优势。统计数据可能会让政策制定者相信需要解决问题。参与者的视觉数据反过来可能会鼓励决策者的注意力和行动。 结论 拥有更广泛的可用数据可以改善卫生系统的决策。参与者生成的视觉数据可以支持使用传统方法收集的数据，或者与组织、研究人员和政策制定者生成的数据进行比较时提供现实检验。这两个研究示例模拟了暴露健康和医疗保健问题的创新方法，因为它们与消费者的现实生活相关，并使弱势群体参与系统变革，即使在表达意见可能被视为冒险的情况下也是如此。
Objectives To show how providing cameras to patients and community residents can be effective at involving the public in generating understanding of consumer, community, and health system problems and strengths.Background Health-care institutions and systems may seek to include consumer perspectives on health and health care yet be challenged to involve the most vulnerable sectors, be they persons with disabilities or persons with low socio-economic status living in societies where a top-down approach to policy is the norm.Methods Drawing on study examples using photo-elicitation and photovoice in Morocco and the United States, the authors explore issues of planning, data analysis, ethical concerns and action related to using participatory visual methods in different cultural and political contexts.Results Visual data generated by consumers can be surprising and can identify health system problems and strengths omitted from data gathered using other means. Statistical data may convince policy makers of the need to address a problem. Participant visual data may in turn encourage policy maker attention and action.Conclusion Health system decision making may be improved by having a broader range of data available. Participant-generated visual data may support data gathered using traditional methods, or provide a reality check when compared with data generated by organizations, researchers and policy makers. The two study examples model innovative ways to surface health and health-care issues as they relate to consumers' real lives and engage vulnerable groups in systems change, even in contexts where expressing opinions might be seen as a risky thing to do.