A qualitative exploration of supports and unmet needs of diverse young women with breast cancer
A qualitative exploration of supports and unmet needs of diverse young women with breast cancer
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DOI：
10.12788/jcso.0169
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发表时间：
2015-09-01
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影响因子：
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通讯作者：
Partridge, Ann H.
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文献类型：
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作者：
Ruddy, Kathryn J.;Greaney, Mary L.;Partridge, Ann H.
由于年龄和生命阶段的不同，年轻女性乳腺癌患者面临的挑战与老年女性不同，但很少有研究关注不同人群女性面临的不同挑战。目的探讨年轻女性乳腺癌患者在诊断和治疗过程中现有的重要支持及未满足的信息和支持需求。方法：我们对年龄在42岁或以下、在过去4年内被诊断为I-III期浸润性乳腺癌的女性进行了20次英文半结构化访谈。我们记录和转录了访谈，并使用协作小组沉浸/结晶来分析数据，确定紧急主题，并确定是否存在种族/民族差异。结果来自美国9个州和加拿大的20名参与者接受了采访，其中25%是西班牙裔，15%是黑人，50%是白人和非西班牙裔，10%是其他种族/民族。据报告，信仰和/或精神和家庭是许多参与者重要的支持来源。他们中的大多数人都哀叹自己与其他年轻幸存者的联系不足，对家人的支持也不足。一些人建议向年轻患者提供更多关于以下方面的信息：与治疗相关的身体和情绪变化；生育和更年期；癌症后的人际关系；应对工作挑战；并过渡到幸存者身份。这些支持或建议都不局限于特定的种族/民族或地理区域。局限性：样本量小，排除了非英语使用者。结论：对年轻乳腺癌幸存者的关键信息提供者访谈确定了不同种族/民族和地区对教育和支持的相似需求。
Background Young women with breast cancer face different challenges than those faced by older women because of their age and life stage, yet few studies have focused on the different challenges faced by women from diverse populations.Objective To explore existing supports that are important during diagnosis and treatment and the unmet needs for information and support in young women with breast cancer.Methods We conducted 20 semistructured interviews in English with women aged 42 or younger who had been diagnosed with stage I-III invasive breast cancer within the previous 4 years. We recorded and transcribed the interviews and used collaborative group immersion/crystallization to analyze data, identify emergent themes, and determine if there were differences by race/ethnicity.Results 20 participants, recruited from 9 US states and Canada, were interviewed, of whom 25% were Hispanic, 15% were black, 50% were white and non-Hispanic, and 10% were another race/ethnicity. Faith and/or spirituality and family were reported as important sources of support by many of the participants. Most of them lamented the inadequacy of their connections with other young survivors and also of supports for their family. Some recommended that young patients be provided with more information about: treatment-related physical and emotional changes; fertility and menopause; relationships after cancer; navigating work challenges; and transitioning into survivorship. None of these supports or recommendations was limited to a specifc race/ethnicity or geographic region.Limitations Small sample size, exclusion of non-English speakers.Conclusions Key informant interviews of young breast cancer survivors identifed similar needs for education and support across various races/ethnicities and geographies.