Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: A descriptive qualitative study
Experiences of male patients and wife-caregivers in the first year post-discharge following minor stroke: A descriptive qualitative study
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DOI：
10.1016/j.ijnurstu.2009.02.008
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发表时间：
2009-09-01
影响因子：
8.1
通讯作者：
King, Kathryn M.
中科院分区：
文献类型：
--
作者：
Green, Theresa L.;King, Kathryn M.
背景：大多数轻度中风患者在急性护理中直接出院，假设不需要太多的适应和调整，因为非正式的护理人员将管理中风恢复过程。我们探讨男性轻微中风患者及其妻子照顾者对出院后第一年生活质量影响因素和照顾者压力的认知。方法：数据来自对两个开放式问题的回答，部分生活质量和照顾者压力量表在一个更大的描述性研究中给予参与者。采用传统的内容分析来评估26名男性患者及其妻子-照顾者在出院后1年内对轻度中风患者生活的叙述。结果：从这些数据中出现的两个主要主题是“脆弱”和“实现”。在脆弱性主题中出现的子主题包括患者男性形象的变化和妻子照顾者对高度警惕角色的假设。在“认识”方面，患者和他们的妻子——照顾者分享了“损失”以及“改变自我和关系”。在这项研究中，患者主要关注他们的身体恢复和他们对必要变化的看法。照顾妻子的人积极参与管理中风给个人、家庭和社会角色带来的日常需求。结论：我们的结论是，病人和照顾妻子的人在轻微中风后花费了大量的时间和精力来重新控制他们的生活，试图将自我和他们的关系的变化纳入他们的生活结构。2009爱思唯尔有限公司版权所有。
Background: Most patients with minor stroke are discharged directly home from acute care, under the assumption that little will be required in the way of adaptation and adjustment because informal caregivers will manage the stroke recovery process. We explored male patients with minor stroke and their wife-caregivers' perceptions of factors affecting quality of life and caregiver strain encountered during the first year post-discharge.Methods: Data were obtained from responses to two open-ended questions, part of quality of life and caregiver strain scales administered to participants in a larger descriptive study. Conventional content analysis was used to assess narrative accounts of living with minor stroke Provided by 26 male patients and their wife-caregivers over a period of 1-year post-discharge.Results: Two major themes that emerged from these data were 'being vulnerable' and 'realization'. Subthemes that arose within the vulnerability theme included changes to patients' masculine image and wife-caregivers' assumption of a hyper-vigilance role. In terms of 'realization' patients and their wife-caregivers shared 'loss' as well as 'changing self and relationships'. Patients in this study focused primarily on their physical recovery and their perceptions of necessary changes. Wife-caregivers were actively involved in managing the day-to-day demands that stroke placed on individual, family and social roles.Conclusions: We conclude that patients and wife-caregivers expend considerable time and energy reestablishing control of their lives following minor stroke in an attempt to incorporate changes to self and their relationship into the fabric of their lives. (C) 2009 Elsevier Ltd. All rights reserved.