The health status and health service needs of primary caregivers of cancer survivors: a mixed methods approach
The health status and health service needs of primary caregivers of cancer survivors: a mixed methods approach
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DOI：
10.1111/ecc.12157
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发表时间：
2014-05-01
影响因子：
2.1
通讯作者：
Donnelly, M.
中科院分区：
文献类型：
--
作者：
Santin, O.;Treanor, C.;Donnelly, M.
这项研究旨在衡量为英国癌症幸存者提供非正式护理的人们的健康状况和护理需求。对 24 名癌症专业人士进行了半结构化访谈，以确定护理人员的护理需求。此外，我们还开展了一项邮政调查，测量癌症幸存者随机样本中 98 名主要护理人员在治疗后 2-20 年的健康和福祉 [36 项简短健康调查 (SF-36)] 和卫生服务利用率。访谈表明，护理人员的需求基本上没有得到满足。特别是，似乎需要提供法定医疗保健、信息、心理支持和参与决策。幸存者和照顾者之间的心理健康评分没有显着差异；与癌症幸存者相比，护理人员在身体健康方面表现更好。与英国标准和其他慢性病护理人员的标准相比，癌症护理人员在每个 SF-36 健康领域的得分要低得多。在治疗结束后很长一段时间内，癌症可能会对非正式护理人员的健康产生负面影响。提供适当的癌症特异性信息可以减轻困难并改善健康和福祉。应特别关注为治疗后癌症幸存者的护理人员开发和提供信息支持。
This study aimed to measure the health status and care needs of people who provide informal care to cancer survivors in the UK. Semi-structured interviews were conducted with a purposive sample of 24 cancer professionals to identify the care needs of caregivers. In addition, we conducted a postal survey measuring the health and well-being [36-item short-form health survey (SF-36)] and health service utilisation of 98 primary caregivers of a random sample of cancer survivors, 2-20 years post-treatment. Interviews indicated that caregivers' needs were largely unmet. In particular, there appeared to be a need in relation to statutory healthcare provision, information, psychological support and involvement in decision-making. There were no significant differences between survivors and caregivers in terms of mental health scores; and caregivers performed better on physical health domains compared with cancer survivors. Compared with UK norms and norms for caregivers of other chronic conditions, cancer caregivers had substantially lower scores on each SF-36 health domain. Cancer may impact negatively on an informal caregiver's health long after treatment has ended. Providing appropriate and cancer-specific information may alleviate difficulties and improve health and well-being. Specific concentration should be given to the development and delivery of information support for caregivers of post-treatment cancer survivors.