Cris de Coeur and the Moral Imperative to Listen to and Learn from Intersex People
Cris de Coeur and the Moral Imperative to Listen to and Learn from Intersex People
复制标题
Cris de Coeur 和倾听双性人并向他们学习的道德义务
DOI：
10.1353/nib.2015.0030
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发表时间：
2015
影响因子：
--
通讯作者：
K. Karkazis
中科院分区：
文献类型：
--
作者：
Arlene B. Baratz;K. Karkazis
双性人第一次公开讲述他们的故事是在20世纪90年代。20年过去了，这些叙述，在他们的坦率灼热，证明了一个持续的失败，见证或承认一些最痛苦的经验，我们给对方。这些叙述不仅仅是轶事，还提供了对护理的第一人称反思，因此代表了一种在临床文献中基本上不存在的长期随访。出于对他们勇气的尊重，我们应该认真考虑这些叙述。必须做出可能改变患者生活的日常决定的临床医生可能会远离负面结果和像这里所说的故事，以避免职业遗憾。诚实的自我评价和接受后悔打开了内疚，贬低和羞愧的大门，但体验这些情绪可能是改变临床实践的关键第一步。
Intersex people first began to publicly tell their stories in the 1990s. Twenty years on, these narratives, scorching in their candor, attest to a continuing failure to bear witness to or to acknowledge some of the most painful experiences we inflict on one another. More than anecdotes, these narratives provide a first–person reflection on care and thus represent a type of long–term follow–up that is largely absent in clinical literature. Out of respect for their courage, we owe these narratives serious consideration. Clinicians who must make daily decisions that may alter patients’ lives may distance themselves from negative outcomes and stories like those told here to avoid professional regret. Honest self–appraisal and accepting regret open the door to feeling guilty, devalued and ashamed, but experiencing these emotions can be a crucial first step in changing clinical practice.