NEONATOLOGISTS JUDGE THE BABY-DOE REGULATIONS
NEONATOLOGISTS JUDGE THE BABY-DOE REGULATIONS
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DOI：
10.1056/nejm198803173181105
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发表时间：
1988-03-17
影响因子：
158.5
通讯作者：
KOPELMAN, AE
中科院分区：
文献类型：
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作者：
KOPELMAN, LM;IRONS, TG;KOPELMAN, AE
目前有效的关于严重残疾婴儿治疗的联邦条例.sbd.所谓的“母鹿婴儿条例”.sbd.是根据1984年对《防止虐待儿童和治疗法》的修正案制定的;这些条例要求，除某些特定情况外，所有新生儿都接受最大限度的延长生命的治疗。我们向美国儿科学会围产期儿科的1007名成员发送了调查问卷，以确定他们对婴儿Doe法规的看法，以及这些法规是否影响了他们的实践; 494名成员（49%）做出了回应。在被调查者中，76%的人认为，现行法规对保护残疾婴儿的权利没有必要; 66%的人认为，这些法规干涉了父母决定采取何种行动符合其子女最大利益的权利; 60%的人认为，这些法规没有充分考虑到婴儿的痛苦。在回答三个假设的严重残疾新生儿案例时，高达32%的受访者表示，最大限度的延长生命治疗不符合所描述的婴儿的最佳利益，但婴儿Doe法规要求进行此类治疗。作为回应，生物学家对目前的婴儿Doe法规的关注与美国最高法院在拒绝早期的一套婴儿Doe法规时所表达的关注相似。这种相似性表明，目前的婴儿Doe法规应该重新评估。
The federal regulations now in effect governing the treatment of severely handicapped infants.sbd.the so-called Baby Doe regulations.sbd.are based on the 1984 amendments to the Child Abuse Prevention and Treatment Act; these regulations require that, except under certain specified conditions, all newborns receive maximal life-prolonging treatment. We sent questionnaires to the 1007 members of the Perinatal Pediatrics Section of the American Academy of Pediatrics to determine their views on the Baby Doe requlations and on whether the regulations had affected their practices; 494 of the members (49 percent) responded. Of the respondents, 76 percent believed that the current regulations were not necessary to protect the rights of handicapped infants; 66 percent believed that the regulations interfered with parents'' right to determine what course of action was in the best interests of their children; and 60 percent believed that the regulations did not allow adequate consideration of infants'' suffering. In responding to the three hypothetical cases of severely handicapped newborns, up to 32 percent of the respondents said that maximal life-prolonging treatment was not in the best interest of the infants described but that the Baby Doe regulations required such treatment. The responding neonatologists'' concerns about the current Baby Doe regulations were similar to those expressed by the United States Supreme Court in rejecting an earlier set of Baby Doe regulations. This similarity suggests that the current Baby Doe regulations should be reevaluated.