Palliative care rehabilitation survey: a pilot study of patients' priorities for rehabilitation goals
Palliative care rehabilitation survey: a pilot study of patients' priorities for rehabilitation goals
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DOI：
10.1177/0269216308096526
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发表时间：
2008-10-01
影响因子：
4.4
通讯作者：
Watanabe, S.
中科院分区：
文献类型：
--
作者：
Schleinich, M. A.;Warren, S.;Watanabe, S.
姑息治疗中的康复往往被忽视。确实考虑为姑息治疗患者提供职业或物理治疗的机构经常咨询有竞争案件的治疗师。很少有治疗师专门从事姑息治疗，但几乎所有的人都问，“需要做什么”？和“我做得怎么样”没有任何现有文书涉及这些问题。其目的是开发和测试一个调查问卷，以确定病人的目标和优先事项，在姑息治疗康复。代表11个领域的加拿大模式的职业表现的问卷设计和试点测试在四个姑息治疗网站。每个问题都反映了姑息治疗中典型的康复干预。患者被要求在数字评级量表上对这些干预措施的重要性进行评级（0，不重要-10，极其重要）。开放式问题收集了关于康复想法的逐字评论。该问卷进行了测试的重测信度与两个访谈约1周的时间间隔。40名患者参加了第一次访谈，32名参加了第二次访谈。11个领域的子分数中有8个达到了0.6或更高的类内相关系数。最高的平均值是在第一次采访时的身体（8.2），机构（7.8）和自我护理（7.8）领域和精神领域（7.9）的第二次采访。最后提出了缩短问卷长度、增强问卷效度的建议。这项工作进一步了解康复在姑息治疗中的作用。它还说明了姑息治疗患者参与研究，有助于制定标准和衡量服务质量的可行性。姑息医学（2008）; 22：822-830
Rehabilitation in palliative care is often overlooked. Settings that do consider occupational or physical therapy for palliative care patients often consult to therapists with competing caseloads. Few therapists specialise in palliative care, but nearly all ask, 'What needs doing'? and 'How well am I doing that'? No existing instruments address their questions. The objective is to develop and test a questionnaire for identifying patient goals and priorities for rehabilitation in palliative care. A questionnaire representing 11 domains of the Canadian Model of Occupational Performance was designed and pilot tested at four palliative care sites. Each question reflected a typical rehabilitation intervention in palliative care. Patients were asked to rate how important each of these interventions was on a numerical rating scale (0, not important-10, extremely important). Open-ended questions captured verbatim comments regarding thoughts of rehabilitation. The questionnaire was tested for test-retest reliability with two interviews approximately 1 week apart. Forty patients participated in the first interview and 32 in the second. Eight of eleven domain sub-scores achieved an intra-class correlation coefficient of 0.6 or higher. The highest means were for the physical (8.2), institutional (7.8) and self-care (7.8) domains on the first interview and for the spiritual domain (7.9) on the second interview. Suggestions are provided to shorten the questionnaire and strengthen validity. This work furthers the understanding of the role of rehabilitation in palliative care. It also illustrates the feasibility of involving palliative care patients in research that contributes to setting standards and measuring quality of service. Palliative Medicine (2008); 22: 822-830