Promoting participation of people with dementia in research.
Promoting participation of people with dementia in research.
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DOI：
10.7748/ns.30.39.38.s43
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发表时间：
2016-05-25
影响因子：
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通讯作者：
Dening, Karen Harrison
中科院分区：
文献类型：
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作者：
Juaristi, Goiz-Eder Aspe;Dening, Karen Harrison
痴呆症是一种神经退行性疾病，可能会对患有痴呆症的个人的生活质量产生严重影响，并会给非正式护理人员和医疗保健系统带来相当大的压力。需要进行研究，以确定预防或推迟痴呆症发病的方法。政府致力于痴呆症研究，但痴呆症研究的资金与其他疾病研究的资金相比相形见绌。此外，痴呆症的研究只有在患有痴呆症的人参与研究的情况下才能取得进展。这篇文章讨论了与痴呆症研究相关的障碍，并描述了英国政府的一项倡议，加入痴呆症研究，该倡议支持痴呆症患者参与研究。
Dementia is a neurodegenerative disorder that can have a severe effect on the quality of life of individuals with the condition, and can place considerable strain on informal carers and healthcare systems. Research is required to identify ways to prevent or delay the onset of dementia. The government is committed to dementia research, yet funding for dementia research is eclipsed by funding for research into other conditions. Moreover, dementia research can only progress if individuals with the condition participate in research studies. This article discusses barriers associated with research into dementia and describes a UK government initiative, Join Dementia Research, which supports research participation for people with dementia.