Methodological Innovations in Data Gathering: Newborn Screening Linkage with Live Births Records, Michigan, 1/2007-3/2008
Methodological Innovations in Data Gathering: Newborn Screening Linkage with Live Births Records, Michigan, 1/2007-3/2008
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DOI：
10.1007/s10995-009-0464-3
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发表时间：
2010-05-01
影响因子：
2.3
通讯作者：
Young, W. I.
中科院分区：
文献类型：
--
作者：
Korzeniewski, S. J.;Grigorescu, V.;Young, W. I.
目的 匹配密歇根州的出生和新生儿筛查记录，以识别和跟踪可能未筛查的婴儿，评估数据质量，并展示 Link Plus 联动软件在匹配 MCH 相关管理数据集方面的实用性。方法 本研究使用了密歇根社区卫生部 2007 年 1 月至 2008 年 3 月期间保存的出生和新生儿筛查记录。 Link Plus 是疾病控制与预防中心开发的免费概率记录链接软件程序，用于匹配记录。链接性能通过链接成功率（有效匹配的百分比）来评估。密歇根新生儿筛查随访计划对不匹配的记录进行了随访。结果 本研究纳入的 142,178 份出生记录中几乎全部 (99.2%) 都与新生儿筛查记录成功匹配。 2008年过渡到基于网络的电子出生证明系统并将新生儿筛查卡识别号纳入出生记录后，根据对约18,000条记录的分析，链接成功率提高到99.6%。在大约 600 条不匹配的记录中，近一半接受过新生儿筛查。大约 8% 的不匹配记录是由于父母拒绝新生儿筛查造成的。这项研究的结果是，九名儿童接受了初步筛查；其中一名被证实具有镰状细胞特征。结论 我们已经证明，免费提供的记录链接软件 Link Plus 可用于成功匹配 MCH 数据库的记录，从而为进一步研究和质量保证调查提供机会。
Objective To match Michigan birth and newborn screening records to identify and follow-up potentially unscreened infants, assess data quality, and demonstrate the utility of Link Plus linkage software for matching MCH related administrative datasets. Methods Birth and newborn screening records maintained by the Michigan Department of Community Health from January 2007 through March 2008 were used in this study. Link Plus, a freely-available probabilistic record linkage software program developed at the Centers for Disease Control and Prevention, was used to match records. Linkage performance was assessed by the linkage success rate (percentage of valid matches). Follow-up of un-matched records was conducted by the Michigan Newborn Screening Follow-up Program. Results Nearly all (99.2%) of the 142,178 birth records included in this study were successfully matched to newborn screening records. Following a transition to a web-based electronic birth certificate system and inclusion of a newborn screening card identification number on the birth record in 2008, the linkage success rate increased to 99.6% based on analysis of approximately 18,000 records. Of approximately 600 un-matched records, nearly half had received a newborn screen. Approximately 8% of un-matched records were due to parental refusal of newborn screening. Nine children received an initial screen as a result of this study; one was confirmed as having sickle cell trait. Conclusions We have demonstrated that a freely available record linkage software, Link Plus, can be used to successfully match records of MCH databases thereby providing an opportunity for further research and quality assurance investigations.