The presentation of seizures and epilepsy in YouTube videos
The presentation of seizures and epilepsy in YouTube videos
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DOI：
10.1016/j.yebeh.2013.01.017
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发表时间：
2013-04-01
影响因子：
2.6
通讯作者：
Selwa, Linda
中科院分区：
文献类型：
--
作者：
Wong, Victoria S. S.;Stevenson, Matthew;Selwa, Linda
我们评估了社交媒体网站YouTube上包含癫痫发作和癫痫参考的视频。在100个视频中，28%包含了癫痫发作事件，25%是癫痫患者讲述他或她的个人经历。最常见的视频类别是个人经历/轶事（44%）和信息/教育（38%）。51%的视频被认为是准确的，9%是不准确的;准确性在其余的视频中不是一个适用的属性。85%的视频对癫痫发作或癫痫患者表示同情，9%是中性的，只有6%是贬义的。98%的视频被认为很容易被外行人理解。与其他形式的大众媒体相比，YouTube上的用户生成内容似乎更具同情心和准确性。我们乐观地认为，随着对癫痫的同情内容的比例转变，对癫痫和癫痫发作的耻辱感将继续减少。(C)2013 Elsevier Inc. All rights reserved.
We evaluated videos on the social media website, YouTube, containing references to seizures and epilepsy. Of 100 videos, 28% contained an ictal event, and 25% featured a person with epilepsy recounting his or her personal experience. Videos most commonly fell into categories of Personal Experience/Anecdotal (44%) and Informative/Educational (38%). Fifty-one percent of videos were judged as accurate, and 9% were inaccurate; accuracy was not an applicable attribute in the remainder of the videos. Eighty-five percent of videos were sympathetic towards those with seizures or epilepsy, 9% were neutral, and only 6% were derogatory. Ninety-eight percent of videos were thought to be easily understood by a layperson. The user-generated content on YouTube appears to be more sympathetic and accurate compared to other forms of mass media. We are optimistic that with a shifting ratio towards sympathetic content about epilepsy, the amount of stigma towards epilepsy and seizures will continue to lessen. (C) 2013 Elsevier Inc. All rights reserved.