Sleep, if you can
Sleep, if you can
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睡觉吧，如果可以的话
DOI：
--
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发表时间：
2017
影响因子：
5.2
通讯作者：
H. Leonard
中科院分区：
文献类型：
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作者：
H. Leonard
> 睡眠编织起护理的衣袖……
>——《麦克白》第二幕第二场
在关于睡眠障碍的文章中，Keilty 和同事1强调了依赖医疗技术（例如家庭通风、氧饱和度监测仪和肠内喂养设备）儿童的家庭护理人员所获得的睡眠量的问题。他们并没有仅仅依赖疲惫父母的回顾性报告，而是优雅地测量了所研究家庭生活中短时间内获得的睡眠量。他们还描述了睡眠不足对家庭生活质量的影响。
虽然对于许多习惯了数周夜班或值班轮班工作的读者来说，睡眠不足的不良影响可能非常熟悉，但长时间工作和照顾残疾儿童之间是有区别的。即使轮班工作很紧张，也总有一个终点；节假日、周末、白班，至少在几天内不会接到电话，恢复正常，而且急需的休息就在眼前。
由于照顾残疾儿童而导致的长期睡眠不足，对于许多家庭来说，这种情况持续了数月甚至数年，几乎不可能通过研究来捕捉……
> Sleep that knits up the ravell’d sleeve of care …
> — Macbeth Act II Scene II
In their article on sleep disturbance, Keilty and colleagues1 highlight the issues around the amount of sleep achieved in family caregivers of children dependent on medical technology, such as home ventilation, oxygen saturation monitors and enteral feeding devices. Rather than relying solely on retrospective parental reporting by tired parents, they elegantly measure the amount of sleep achieved over a short time window in the lives of the families studied. They also describe the effects of sleep deprivation on the families’ quality of life.
While the untoward effects of sleep deprivation may be very familiar to many readers used to working weeks of night shifts or on call rotas, there is a difference between working long hours and caring for a disabled child. Even with intense work rotas, there is always an end point; holidays, weekends, day shifts, when freedom from calls and normality will return for a few days at least, and much needed rest is in sight.
The chronicity of sleep deprivation due to caring for disabled child, which for many families goes on relentlessly for months and years, is almost impossible to capture with research …