Issues using linkage of hospital records and death certificate data to determine the size of a potential palliative care population
Issues using linkage of hospital records and death certificate data to determine the size of a potential palliative care population
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DOI：
10.1177/0269216316673550
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发表时间：
2017-06-01
影响因子：
4.4
通讯作者：
Semmens, James
中科院分区：
文献类型：
--
作者：
Brameld, Kate;Spilsbury, Katrina;Semmens, James
背景：旨在识别姑息治疗人群的研究使用了死亡证明的数据，在某些情况下还使用了医院记录。根据所用数据来源的不同，已确定人口的规模和特征可表现出相当大的差异。重要的是，服务规划者和研究人员要意识到这一点。目的：说明潜在姑息治疗人群的规模和特征的差异，这取决于相关医院记录和死亡证明数据的不同使用。设计：回溯性队列研究。设置/参与者：队列包括23,852名20岁及以上的人，他们在排除与怀孕或创伤有关的死亡后于2009年1月1日至2010年12月31日期间在西澳大利亚死亡。在这个队列中，通过链接的医院记录和死亡证明数据，确定了死于10种或更多被认为可以接受姑息治疗的疾病的人数、比例和特征。结果：根据所使用的信息来源(S)，在23,852名死亡的人中，有43%到73%的人有潜在的可以接受姑息治疗的疾病。死亡年龄的中位数和疾病死者的性别分布也随着信息来源的不同而不同。结论：卫生服务规划者和研究人员在使用医院记录和死亡证明数据来确定潜在的姑息治疗人群时需要意识到局限性。使用紧急情况司和其他行政数据来源可能会进一步加剧这种差异。
Background: Studies aiming to identify palliative care populations have used data from death certificates and in some cases hospital records. The size and characteristics of the identified populations can show considerable variation depending on the data sources used. It is important that service planners and researchers are aware of this.Aim: To illustrate the differences in the size and characteristics of a potential palliative care population depending on the differential use of linked hospital records and death certificate data.Design: Retrospective cohort study.Setting/participants: The cohort consisted of 23,852 people aged 20years and over who died in Western Australia between 1 January 2009 and 31 December 2010 after excluding deaths related to pregnancy or trauma. Within this cohort, the number, proportion and characteristics of people who died from one or more of 10 medical conditions considered amenable to palliative care were identified using linked hospital records and death certificate data.Results: Depending on the information source(s) used, between 43% and 73% of the 23,852 people who died had a condition potentially amenable to palliative care identified. The median age at death and the sex distribution of the decedents by condition also varied with the information source.Conclusion: Health service planners and researchers need to be aware of the limitations when using hospital records and death certificate data to determine a potential palliative care population. The use of Emergency Department and other administrative data sources could further exacerbate this variation.