The relationship between the Family Empowerment Scale and Gross Motor Function Measure-66 in Young Children with cerebral palsy
The relationship between the Family Empowerment Scale and Gross Motor Function Measure-66 in Young Children with cerebral palsy
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DOI：
10.1111/cch.12807
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发表时间：
2020-10-05
影响因子：
1.9
通讯作者：
Prosser, Laura A.
中科院分区：
文献类型：
--
作者：
Pierce, Samuel R.;Skorup, Julie;Prosser, Laura A.
背景脑瘫（CP）是儿童运动残疾的最常见原因。为了满足脑瘫儿童及其家庭的需要，需要考虑的一个概念是家庭赋权。增强家庭权能可以定义为家庭获得技能、知识和资源的过程，使他们能够控制和改善自己的生活质量。粗大运动功能和家庭赋权之间的关系可能很重要，因为CP儿童在执行运动技能的能力上差异很大，这可能会影响他们家庭的赋权水平。本研究旨在探讨3岁以下脑性瘫痪儿童的家庭授权量表（FES）与粗大运动功能量表（GMFM-66）之间的关系。方法41例患儿，平均年龄23.8个月。FES由参与者的父母或常规照顾者完成，包括家庭、服务情况和社区/政治环境中赋权的总分和分量表。GMFM-66由物理治疗师进行，包括粗大运动功能（GMFM-66）总分和维度B（坐）、维度C（爬行和跪）、维度D（站立）和维度E（行走、跑步和跳跃）的分项评分。结果FES总分与GMFM（总分和B-E维度）呈显著正相关，相关系数在0.43 ~ 0.62之间。在FES和GMFM-66的大多数分量表之间也发现了显著的关系。结论本研究提供的证据表明，家庭授权和粗大运动功能之间的关系，在幼儿CP和建议，照顾者的儿童与较高的粗大运动功能报告更高水平的自我效能。
Background Cerebral palsy (CP) is the most common cause of motor disability in children. A concept to consider in order to meet the needs of children with CP and their families is family empowerment. Family empowerment can be defined as the process by which families acquire the skills, knowledge and resources to allow them to gain control and improve the quality of their lives. The relationship between gross motor function and family empowerment may be important because children with CP vary so widely in their ability to perform motor skills, which may affect their family's levels of empowerment. The purpose of this research was to investigate the relationship between the Family Empowerment Scale (FES) and Gross Motor Function Measure-66 (GMFM-66) in children with CP who were under 3 years of age. Methods Forty-one children with a mean age of 23.8 months participated in this study. The FES was completed by the participants' parents or regular caregivers and includes a total score and subscales of empowerment in the family, in service situations and in community/political environments. The GMFM-66 was administered by a physical therapist and consists of a total score of gross motor function (GMFM-66) and subscores for Dimension B (sitting), Dimension C (crawling and kneeling), Dimension D (standing) and Dimension E (walking, running and jumping). Results Statistically significant positive correlations were found between the FES total and GMFM (total score and Dimensions B-E) with coefficients varying from 0.43-0.62. Significant relationships were also found between most subscales of the FES and the GMFM-66. Conclusions This study provides evidence of a relationship between family empowerment and gross motor function in young children with CP and suggests that caregivers of children with higher gross motor function report higher levels of self-efficacy.