Health-related quality of life in parents of pediatric solid organ transplant recipients in Japan
Health-related quality of life in parents of pediatric solid organ transplant recipients in Japan
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日本儿童实体器官移植受者父母的健康相关生活质量
DOI：
10.1111/petr.12435
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发表时间：
2015
影响因子：
1.3
通讯作者：
and Kamibeppu K
中科院分区：
文献类型：
--
作者：
Kikuchi R;Ono M;Kinugawa K;Endo M;Mizuta K;Urahashi T;Ihara Y;Yoshida S;Ito S;and Kamibeppu K
很少有研究检查儿童Tx受体父母的HRQOL。本研究探讨了这些父母的HRQOL和HRQOL之间的关系和感知负担的养育，家庭功能和社会支持。2013年9月至12月期间完成了自我报告匿名问卷和病历调查。SF-36 v2用于评估身体、心理和社会健康，用于测量HRQOL。虽然身体和心理健康的值高于标准值（科恩的标准差分别为0.34和0.17），社会健康评分较低（d= 0.21）。“与捐赠无关的父母咨询”（标准化偏回归系数：β =-0.52）与身体健康有关。“家庭功能”和“家庭与主要随访医院之间的通勤时间”（β = 0.57和-0.31）与心理健康有关。“感知养育负担总分”（β =-0.31）与社会健康有关。关于父母的HRQOL，而身体和心理健康是有利的，社会健康受损。在临床实践中，针对父母的身体状况和促进社区和家庭的理解和支持，以分享受援者的养育干预是重要的，在提高父母的HRQOL。
Few studies have examined HRQOL in pediatric Tx recipients’ parents. This study investigated HRQOL in these parents and relationships between HRQOL and perceived burden of nurturing, family functioning, and social support. Self‐report anonymous questionnaires and a survey of medical records were completed between September and December 2013. The SF‐36v2, which evaluates physical, psychological, and social health, was used to measure HRQOL. While values for physical and psychological health were higher than standard values (Cohen'sd= 0.34 and 0.17, respectively), social health scores were lower (d= 0.21). “Parental consultation unrelated to donation” (standardized partial regression coefficient: β = −0.52) was associated with physical health. “Family functioning” and “Commuting time between home and primary follow‐up hospital” (β = 0.57 and −0.31) were related to psychological health. “Total score for perceived burden of nurturing” (β = −0.31) was related to social health. Regarding parental HRQOL, while physical and psychological health was favorable, social health was impaired. In clinical practice, interventions targeting parents’ physical conditions and facilitation of community and family understanding and support to share recipients’ nurturing are important in improving parental HRQOL.