The psychosocial impact of chronic wounds on patients with severe epidermolysis bullosa
The psychosocial impact of chronic wounds on patients with severe epidermolysis bullosa
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DOI：
10.12968/jowc.2012.21.11.528
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发表时间：
2012-11-01
影响因子：
1.9
通讯作者：
Mudge, E.
中科院分区：
文献类型：
--
作者：
Adni, T.;Martin, K.;Mudge, E.
目的：探讨与营养不良性和交界性大疱性表皮病（EB）慢性伤口的个人的生活经验，以提高理解，因此，提高护理提供给这组患者的心理社会问题，影响them.Method的获取深入的数据：一个现象学研究，采用解释现象学分析。一个有目的的抽样方法是用六个人回复邮政邀请participation.Results：一对一的访谈，六个上级主题被确定。这些是：应对，疼痛，感知，情绪影响，社会影响和支持网络，每个都有从属主题。所有的上级主题已确定由以前的研究到慢性伤口，烧伤和毁容条件，然而，新的下属themeserosed.Conclusion：这项研究强调了需要与EB个人有一个多学科的方法，他们的照顾，特别需要疼痛管理，心理干预和护理支持，从那些客户认为了解EB患者的要求。对EB患者身份问题的进一步研究是提倡的。利益声明：本研究没有外部资金来源。作者没有利益冲突需要声明。
Objective: To explore the lived experience of individuals with chronic wounds associated with dystrophic and junctional epidermolysis bullosa (EB), to improve understanding and, therefore, enhance the care provided to this group of patients by acquiring in depth data on the psychosocial issues that affect them.Method: A phenomenological study using interpretive phenomenological analysis was employed. A purposive sampling method was used with six individuals replying to postal invitation to participate.Results: Following one-to-one interviews, six superordinate themes were identified. These were: coping, pain, perceptions, emotional impact, social impact and support network, each with subordinate themes. All of the superordinate themes have been identified by previous research into chronic wounds, burns and disfiguring conditions; however, new subordinate themes arose.Conclusion: This study highlighted the need for individuals with EB to have a multidisciplinary approach to their care with a particular need for pain management, psychological intervention and nursing support from those whom clients perceive as understanding the requirements of patients with EB. Further research into identity issues in individuals with EB is advocated.Declaration of interest: There were no external sources of funding for this study. The authors have no conflicts of interest to declare.