Software-Enabled Distributed Network Governance: The PopMedNet Experience.
Software-Enabled Distributed Network Governance: The PopMedNet Experience.
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DOI：
10.13063/2327-9214.1213
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发表时间：
2016-01-01
期刊：
影响因子：
--
通讯作者：
Brown, Jeffrey
中科院分区：
文献类型：
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作者：
Davies, Melanie;Erickson, Kyle;Brown, Jeffrey
简介：电子健康信息的可用性不断扩大，引起了人们对分布式健康数据研究网络的兴趣增加。分布式研究网络模型：分布式研究网络模型将数据留在数据持有者的控制之下。数据持有者、网络协调中心和研究人员在此模型中具有不同的需求和挑战。软件支持的治理 POPMEDNET：网络利益相关者的担忧在 PopMedNet 软件平台的设计和治理模型中得到解决。 PopMedNet 功能包括分布式查询、可定制工作流程以及审核和搜索功能。其灵活的基于角色的访问控制系统可以执行不同的治理策略。选定的案例研究：四个案例研究描述了如何使用 PopMedNet 来执行网络治理模型。问题和挑战：信任是分布式研究网络的重要组成部分，必须在数据合作伙伴愿意进一步参与之前建立信任。随着网络的增长以及新数据、分析方法和查询方法的开发，必须管理 PopMedNet 系统的复杂性。结论：PopMedNet 软件平台通过旨在满足网络利益相关者需求的可定制功能来支持各种网络结构、治理模型和研究活动。
INTRODUCTION: The expanded availability of electronic health information has led to increased interest in distributed health data research networks.DISTRIBUTED RESEARCH NETWORK MODEL: The distributed research network model leaves data with and under the control of the data holder. Data holders, network coordinating centers, and researchers have distinct needs and challenges within this model.SOFTWARE ENABLED GOVERNANCE POPMEDNET: The concerns of network stakeholders are addressed in the design and governance models of the PopMedNet software platform. PopMedNet features include distributed querying, customizable workflows, and auditing and search capabilities. Its flexible role-based access control system enables the enforcement of varying governance policies.SELECTED CASE STUDIES: Four case studies describe how PopMedNet is used to enforce network governance models.ISSUES AND CHALLENGES: Trust is an essential component of a distributed research network and must be built before data partners may be willing to participate further. The complexity of the PopMedNet system must be managed as networks grow and new data, analytic methods, and querying approaches are developed.CONCLUSIONS: The PopMedNet software platform supports a variety of network structures, governance models, and research activities through customizable features designed to meet the needs of network stakeholders.