This really explains my case!’: biographical reconstruction of Japanese people with fibromyalgia meeting peers
This really explains my case!’: biographical reconstruction of Japanese people with fibromyalgia meeting peers
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这确实解释了我的情况！”：日本纤维肌痛患者与同龄人的传记重建
DOI：
10.1080/14461242.2015.1098559
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发表时间：
2016
影响因子：
3.6
通讯作者：
Hirono Ishikawa & Takahiro Kiuchi
中科院分区：
文献类型：
--
作者：
Mieko Homma;Yoshihiko Yamazaki;Hirono Ishikawa & Takahiro Kiuchi
纤维肌痛 (FM) 是一种有争议的疾病，其器质性基础未知，因此该疾病的合法性存在争议。 FM 患者很难解释他们的“隐形”疾病并重建他们的传记。本研究的重点是自助团体（SHG）在重建 FM 患者传记过程中的重要性。我们采访了 13 名 FM 患者，他们参加了 2 种不同类型的 SHG。受访者的严重身体症状与他人的评价之间存在差异，导致自我怀疑和生存危机。这些中断通过接受诊断得到了部分修复，但这提供了有限的力量来解释它们的“不合理”中断。我们的研究结果表明，聆听同龄人的生活故事的重要性，可以通过“fu-ni-ochiru”体验来修复线人被打乱的传记，“fu-ni-ochiru”体验是一种对疾病的理解形式，线人通过身体感觉或完全接受而不是逻辑理解获得清晰的视角。因此，我们的研究扩展了关于 FM 患者如何重建他们的传记的知识。
Fibromyalgia (FM) is a controversial disorder with an unknown organic basis, so the legitimacy of the disease is controversial. People with FM struggle to explain their ‘invisible’ illness and to reconstruct their biographies. This study focuses on the significance of self-help groups (SHGs) in the process of reconstructing biographies of persons with FM. We interviewed 13 individuals with FM who participated in 2 different types of SHGs. Informants suffer from disparities between their severe bodily symptoms and appraisals from others, resulting in self-doubt and existential crisis. These disruptions were partially repaired by receiving a diagnosis, but this provided limited power to explain their ‘unreasonable’ disruption. Our findings indicate the importance of hearing the life stories of peers which can repair informants’ disrupted biographies through thefu-ni-ochiruexperience, a form of comprehension of one's illness by which the informant obtains a clear perspective through physical sensation, or full acceptance rather than logical understanding. Thus, our study expands knowledge regarding how people with FM reconstruct their biographies.