Are end-of-life patient education materials readable?
Are end-of-life patient education materials readable?
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DOI：
10.1177/0269216309106313
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发表时间：
2009-09-01
影响因子：
4.4
通讯作者：
Wallace, L. S.
中科院分区：
文献类型：
--
作者：
Ache, K. A.;Wallace, L. S.
虽然制定了制定低识字率患者教育材料的准则，但设计不良的材料仍在传播。我们评估了互联网上可用的英语临终病人教育材料的可读性和布局。我们检索了五个国家姑息治疗组织的互联网网站，以确定患者教育材料进行审查。下载并打印每个姑息治疗组织15份患者教育材料的方便样本（n = 75）。使用简化的Gobbledygook （SMOG）来计算文本的阅读等级水平（可读性），而使用用户友好工具（UFT）的标准来评估布局特征。患者教育资料的阅读年级水平为7(th) ~ 12（th）级（平均值+/- SD = 11.1 +/- 1.9）。没有患者教育材料在所有UFT标准上得分很高。特别是，最大的需求是增加留白的数量和改进信息在视觉上的组织方式。医疗服务提供者只能在决策过程中提供帮助，患者和他们的亲人最终要对做出这些选择负责。这些决定很重要，因为需要在患者仍有认知能力的情况下做出关于临终关怀的选择。精心设计的临终病人教育材料可以提供丰富的知识，以协助和指导决策。在这些结果的基础上，临终病人教育材料应该修订，使一般成年人能够理解所呈现的信息，从而提高他/她做出明智决定的能力。缓和医学（2009）；23日:545 - 548
Although established guidelines for developing low-literacy patient education materials are available, poorly designed material continue to be disseminated. We evaluated the readability and layout of English-language end-of-life patient education materials available on the Internet. Internet websites of five national palliative care organizations were searched to identify patient education materials for review. A convenience sample of 15 patient education materials per palliative care organization (n = 75) was downloaded and printed. The Simplified Measure of Gobbledygook (SMOG) was used to calculate the reading grade level (readability) of the text, while the layout features was assessed using criteria from the User-Friendliness Tool (UFT). The reading grade level of patient education materials ranged from 7(th) to 12(th) grade (mean +/- SD = 11.1 +/- 1.9). None of the patient education materials scored high on all UFT criteria. In particular, the greatest need was increasing the amount of white space and improving the way in which information was organized visually. Healthcare providers can only aid in the decision process, patients and their loved ones are ultimately responsible for making these choices. These decisions are important as choices need to be made about end-of-life care while patients are still cognitively able to do so. Well designed end-of-life patient education materials can offer a wealth of knowledge to assist and guide decision making. On the basis of these results, end-of-life patient education materials should be revised so that the average adult is able to understand the message presented, thereby enhancing his/her ability to make informed decisions. Palliative Medicine (2009); 23: 545-548