Nomenclature for congenital and paediatric cardiac disease: the International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Iteration of the International Classification of Diseases (ICD-11).
Nomenclature for congenital and paediatric cardiac disease: the International Paediatric and Congenital Cardiac Code (IPCCC) and the Eleventh Iteration of the International Classification of Diseases (ICD-11).
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DOI：
10.1017/s1047951117002244
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发表时间：
2017-12-01
影响因子：
1
通讯作者：
Jacobs, Jeffrey P
中科院分区：
文献类型：
--
作者：
Franklin, Rodney C G;Beland, Marie J;Jacobs, Jeffrey P
长期以来，人们一直在寻求一种国际认可并在全球范围内使用的冠心病诊断分类方案。由国际儿科和先天性心脏病命名学会(国际命名学会)编制和维护的《国际儿科和先天性心脏病编码》(IPCCC)被广泛使用，但也催生了许多内容因用户而异的“短名单”版本。因此，使用单一的最新和协调的命名系统对CHD患者进行统一识别的努力继续受阻，即使共同的命名已被用作组成各种“短名单”的基础。为了解决这一问题，国际命名学会将其与世界卫生组织的努力联系起来，以便在国际疾病分类(ICD-11)第11次迭代内获得全球公认的CHD命名树。国际命名学会已经向世界卫生组织提交了一份CHD分级命名树，预计该树将越来越多地成为所有对先天性心脏病编码感兴趣的社区的“短名单”。本文回顾了国际疾病分类和IPCCC的历史，概述了ICD-11先天性心脏病诊断清单的制定过程以及清单上每个术语的定义。本文还包括ICD-11基础部分先天心脏畸形部分的内容概述，全文出版于此。国际命名学会的未来计划包括再次与世界卫生组织联系，解决与心脏畸形有关的程序命名问题。通过这样做，该学会将继续在全球范围内标准化CHD命名法方面发挥作用，从而促进对患有先天性心脏畸形的胎儿、儿童和成人的研究和更好的结果。
An internationally approved and globally used classification scheme for the diagnosis of CHD has long been sought. The International Paediatric and Congenital Cardiac Code (IPCCC), which was produced and has been maintained by the International Society for Nomenclature of Paediatric and Congenital Heart Disease (the International Nomenclature Society), is used widely, but has spawned many "short list" versions that differ in content depending on the user. Thus, efforts to have a uniform identification of patients with CHD using a single up-to-date and coordinated nomenclature system continue to be thwarted, even if a common nomenclature has been used as a basis for composing various "short lists". In an attempt to solve this problem, the International Nomenclature Society has linked its efforts with those of the World Health Organization to obtain a globally accepted nomenclature tree for CHD within the 11th iteration of the International Classification of Diseases (ICD-11). The International Nomenclature Society has submitted a hierarchical nomenclature tree for CHD to the World Health Organization that is expected to serve increasingly as the "short list" for all communities interested in coding for congenital cardiology. This article reviews the history of the International Classification of Diseases and of the IPCCC, and outlines the process used in developing the ICD-11 congenital cardiac disease diagnostic list and the definitions for each term on the list. An overview of the content of the congenital heart anomaly section of the Foundation Component of ICD-11, published herein in its entirety, is also included. Future plans for the International Nomenclature Society include linking again with the World Health Organization to tackle procedural nomenclature as it relates to cardiac malformations. By doing so, the Society will continue its role in standardising nomenclature for CHD across the globe, thereby promoting research and better outcomes for fetuses, children, and adults with congenital heart anomalies.