What patients with cancer want to know about pain: A qualitative study
What patients with cancer want to know about pain: A qualitative study
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DOI：
10.1016/j.jpainsymman.2007.03.011
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发表时间：
2008-02-01
影响因子：
4.7
通讯作者：
Jadad, Alejandro R.
中科院分区：
文献类型：
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作者：
Bender, Jacqueline L.;Hohenadel, Joanne;Jadad, Alejandro R.
研究表明，当患者能够与他们的健康专业人员讨论他们的问题时，他们会感到更满意，并获得更好的健康结果。更好地理解癌症患者的问题可能有助于指导干预措施，以满足他们的信息需求，并改善疼痛管理。这项研究试图探索和描述乳腺癌女性对与癌症相关的疼痛的问题。从加拿大多伦多一家大型教学医院招募的患有乳腺癌或其治疗相关疼痛的女性进行了半结构化访谈。采访被录音并完整转录。在18名参与者接受采访后，数据达到饱和。分析包括确定主题和制定关于疼痛的问题的分类法。总共确定了七个主题的200多个问题：(1)了解癌症疼痛，(2)知道将会发生什么，(3)疼痛控制的选择，(4)应对癌症疼痛，(5)与癌症疼痛的其他人交谈，(6)寻找治疗癌症疼痛的帮助，以及(7)描述疼痛。收集到的信息表明，阐述和阐明关于疼痛的问题是一个依赖于上下文的、耗时的过程，需要反思、知识和良好的语言使用。患者对疼痛及其治疗有许多不同的问题，这些问题可能很难在典型的会诊背景下得到解决。为了充分管理疼痛，需要创新的努力，使患者和卫生专业人员能够识别、表达和回答这样的问题。基于互联网的工具可以提供其中的一些解决方案。
Research indicates that patients feel more satisfied and obtain better health outcomes when they are able to discuss their questions with their health professionals. A better understanding of cancer patients' questions may help guide interventions to address their information needs and improve pain management. This study sought to explore and describe the questions that women with breast cancer have about pain related to cancer. Semistructured interviews were conducted with women with pain related to breast cancer or its treatment, recruited from a large teaching hospital in Toronto, Canada. Interviews were audio recorded and fully transcribed. Data saturation was reached after 18 participants were interviewed. Analysis involved the identification of themes and the development of a taxonomy of questions about pain. In total, over 200 questions concerning seven main themes were identified: (1) understanding cancer pain, (2) knowing what to expect, (3) options for pain control, (4) coping with cancer pain, (5) talking with others with cancer pain, (6) finding help managing cancer pain, and (7) describing pain. The information collected suggests that formulating and articulating questions about pain is a context-dependent, time-intensive process that requires reflection, knowledge, and a good use of language. Patients have numerous and diverse questions about pain and its treatment, which may be difficult to address within the context of a typical consultation. To manage pain adequately, innovative efforts are needed to enable patients and health professionals to recognize, articulate, and answer such questions. Internet-based tools could provide some of these solutions.