What Teens Do Not Know Can Hurt Them: An Assessment of Disease Knowledge in Adolescents and Young Adults with IBD
What Teens Do Not Know Can Hurt Them: An Assessment of Disease Knowledge in Adolescents and Young Adults with IBD
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DOI：
10.1097/mib.0000000000000974
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发表时间：
2017-01-01
影响因子：
4.9
通讯作者：
Greenley, Rachel N.
中科院分区：
文献类型：
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作者：
Gumidyala, Amitha P.;Plevinsky, Jill M.;Greenley, Rachel N.
背景：虽然充分的疾病相关知识被认为是过渡准备的重要组成部分，但很少有实证关注指向了解患有炎症性肠病（IBDs）的青少年和年轻人（AYAs）的疾病知识水平或与更高知识水平相关的因素。本研究描述了IBDs患者的疾病知识，并检查了与较高知识相关的个人、家庭和医患关系因素。方法：75名16 ~ 20岁的青少年青少年及其家长参与。AYAs和家长报告了人口统计、父母自主授予行为、医疗保健满意度、患者-提供者过渡相关的沟通和疾病知识。AYAs自我报告疾病自我效能。从病历中提取疾病信息。结果：在12道知识题中，asa平均正确率为8.20 （SD = 1.75）。超过85%的AYAs正确识别了他们的IBD类型，IBD相关手术的次数和类型，以及他们目前的IBD医疗提供者的名称。相比之下，关于药物补充频率，药物和酒精对IBD的影响，以及预约医疗预约的次数的知识是次优的（即，50%或更少的人提供了正确的回答）。AYA年龄越大、AYA医疗保健满意度越高、AYA自我效能感越高、患者与提供者之间的过渡相关沟通越频繁，都与ibd相关知识水平较高相关。结论：为了提高疾病知识，提供者应该通过鼓励与年龄相适应的IBD管理来培养AYA自我效能感，并在临床预约时优先讨论与过渡相关的问题。此外，培养与患者的合作和积极的关系将提高满意度，也可能增加知识。
Background: Although adequate disease-related knowledge is recognized as an important component of transition readiness, little empirical attention has been directed toward understanding the levels of disease knowledge of adolescents and young adults (AYAs) with inflammatory bowel diseases (IBDs) or factors associated with higher levels of knowledge. This study described disease knowledge in a sample of AYAs with IBDs and examined individual, family, and patient-provider relationship factors associated with higher knowledge.Methods: Seventy-five AYAs (ages 16-20) and their parents participated. AYAs and parents reported on demographics, parent autonomy granting behaviors, health care satisfaction, patient-provider transition-related communication, and disease knowledge. AYAs self-reported on disease self-efficacy. Disease information was abstracted from the medical record.Results: On average, AYAs answered 8.20 (SD = 1.75) of 12 knowledge questions correctly. Over 85% of AYAs correctly identified their type of IBD, number and type of IBD-related surgeries, and name of their current IBD medical provider. In contrast, knowledge about frequency of medication refills, effects of drugs and alcohol on IBD, and number to call to schedule medical appointments was suboptimal (i.e., 50% or fewer provided a correct response). Older AYA age, greater AYA health care satisfaction, higher AYA self-efficacy, and more frequent patient-provider transition-related communication were each associated with higher IBD-related knowledge.Conclusions: To promote disease knowledge, providers should foster AYA self-efficacy by encouraging age-appropriate involvement in IBD management and make discussion of transition-related issues a priority during clinical appointments. Moreover, fostering collaborative and positive relationships with patients will improve satisfaction and may also enhance knowledge.