A Critical Discussion of Patient Engagement in Research
A Critical Discussion of Patient Engagement in Research
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DOI：
10.17294/2330-0698.1273
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发表时间：
2017-12-01
影响因子：
1.7
通讯作者：
Hanson, Heather M.
中科院分区：
文献类型：
--
作者：
Bombak, Andrea Elaine;Hanson, Heather M.
越来越多的人希望患者在研究中发挥更大的作用。一些项目的资金现在需要纳入患者的观点或参与研究过程。虽然旨在实现值得称赞的目标，但重要的是要严格评估用于实现这些目标的手段。目前，可能存在只重视某些认识论的问题，未能评估现有的计划及其影响，边缘化较少“参与”的患者，以及只促进象征主义。在假设患者参与方法是足够的或将患者观点纳入研究的唯一手段之前，这些领域需要探索和反思。
Patients are increasingly expected to take a more involved role in research. Funding for some projects now requires incorporating patients' viewpoints or involvement in research processes. While intended to achieve commendable goals, it is important to critically assess the means used to achieve these aims. Presently, there may be issues of valuing only certain epistemologies, failing to evaluate existing programs and their impacts, marginalizing less "engaged" patients, and promoting only tokenism. These are areas that require exploration and reflection before assuming that patient engagement approaches are sufficient or the only means of incorporating patient perspectives into research.