Developing the theoretical basis for service user/survivor-led research and equal involvement in research
Developing the theoretical basis for service user/survivor-led research and equal involvement in research
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DOI：
10.1017/s1121189x0000186x
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发表时间：
2005-01-01
期刊：
影响因子：
--
通讯作者：
Beresford, P
中科院分区：
文献类型：
--
作者：
Beresford, P
目的和方法--这篇文章从服务使用者/幸存者的角度出发，探索了一个假说，该假说试图为心理健康服务使用者/幸存者充分和平等地参与研究过程和更广泛的研究结构提供更系统的基础。这一假说挑战了传统的eM理论，该假说以实证主义的假设为基础，认为价值优先的三个因素：距离、中立和客观性(它认为这歧视了服务用户及其经验性知识)。结果和结论--该提案讨论了如何减少这种(客观和主观)距离的方法，以提高研究质量，使服务用户及其直接体验能够更平等地参与，并使非服务用户研究人员能够在更平等的条件下与服务用户一起工作。
Aims and methods - This article, written from a service user/survivor perspective, explores a hypothesis which seeks to offer a more systematic basis for the full and equal involvement of mental health service users/survivors in both the research process and research structures more generally. The hypothesis challenges traditional em basis on positivist assumptions about the priority of values of 'distance', 'neutrality' and 'objectivity' (which it argues discriminate against service users and their experiential knowledge). It explores instead the idea that 'the shorter the distance between direct experience and its interpretation, then the less likely resulting knowledge is to be inaccurate, unreliable and distorted. Results and conclusions - The proposal discusses ways in which such (objective and subjective) distance may be reduced, to improve the quality of research, to enable more equal involvement of service users and their direct experience and to make it possible for non-service user researchers to work alongside service users on more equal terms.