Spinal cord injury rehabilitation research: patient priorities, current deficiencies and potential directions
Spinal cord injury rehabilitation research: patient priorities, current deficiencies and potential directions
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DOI：
10.3109/09638280903420325
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发表时间：
2010-01-01
影响因子：
2.2
通讯作者：
Hammell, Karen R. Whalley
中科院分区：
文献类型：
--
作者：
Hammell, Karen R. Whalley
目的。为了突出脊髓损伤(SCI)患者的研究重点，概述康复研究的现状，并为未来的研究提供潜在的富有成效的途径。评论。结果。脊髓损伤患者将疼痛、抑郁、疲劳、压疮、痉挛以及膀胱和肠道的管理列为研究重点。研究揭示了这些继发性问题之间的多重相互联系，所有这些问题都对生活质量(QOL)产生了负面影响。然而，尽管现有的研究数量很大，但知识上仍然存在重大差距，研究工作明显重复，几乎没有干预措施有足够的证据基础。关于社区参与的问题--另一个研究重点--直到最近才引起研究人员的注意。这篇评论认为，研究应侧重于对脊髓损伤患者具有相关性和重要性的问题和结果；解决继发性疾病的复杂性及其相互关系；评估参与有意义生活的环境障碍；旨在确定并提供有效和相关的干预措施。研究伙伴关系的创新方法、混合方法和探索通常从定量研究中忽略的变量，可能会增加识别和解决脊髓损伤患者面临的复杂问题的可能性。此外，将管理重点放在实现充满希望、有目的、令人满意和有意义的生活上，可能有助于提高脊髓损伤后的生活质量。
Purpose. To highlight research priorities of people with spinal cord injury (SCI), outline the current state of rehabilitation research and suggest potentially fruitful avenues for future inquiry.Method. Commentary.Results. People with SCI identify pain, depression, fatigue, pressure sores, spasticity and the management of bladder and bowel as research priorities. Research reveals multiple interconnections between these secondary problems, all of which negatively impact quality of life (QOL). However, despite a substantial volume of existing research, significant gaps in knowledge remain, duplications of research effort are apparent and few interventions have an adequate evidence base. Issues concerning community participation - another research priority - have only recently attracted researchers' attention.Conclusions. This commentary contends that research should: focus on issues and outcomes of relevance and importance to people living with SCI; address the complexities of secondary conditions and their inter-relationships; appraise environmental barriers to participation in meaningful living; be designed to identify and inform effective and relevant interventions. Innovative approaches to research partnerships, mixed methods and exploring variables usually omitted from quantitative studies might enhance the likelihood that the complexity of issues facing people living with SCI will be identified and addressed. Moreover, a governing focus on achieving lives experienced as hopeful, purposeful, satisfying and meaningful could contribute to enhancing QOL outcomes following SCI.