Financing state newborn screening programs: Sources and uses of funds
Financing state newborn screening programs: Sources and uses of funds
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DOI：
10.1542/peds.2005-2633f
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发表时间：
2006-05-01
期刊：
影响因子：
8
通讯作者：
Therrell, BL
中科院分区：
文献类型：
--
作者：
Johnson, K;Lloyd-Puryear, MA;Therrell, BL
背景。新生儿筛查的资金筹措不同于几乎所有其他公共卫生项目。除了5个筛查项目外，所有项目都收取费用作为项目资金的主要来源。大多数州采用收费方式为新生儿筛查提供资金，以确保为这一重要的公共卫生活动提供持续的资金。本文报告了两种类型的数据，即来自37个州公共卫生机构的调查的原始数据和来自7个州的探索性案例研究的结果。参与这项调查的大多数项目（73%）报告说，他们的新生儿筛查资金在2002年至2005年期间增加了，主要是通过增加费用，在较小程度上通过医疗补助、第五章妇幼保健服务整体补助金和州一般收入资金。所有收取费用的回应州（n = 31）都使用这些资金来支持实验室费用，大多数（70%）资助短期后续服务和项目管理。近一半（47%）为诊断之外的长期随访服务、病例管理或家庭支持提供资金。其他州（43%）资助遗传或营养咨询和配方食品或治疗。无论资金来源如何，现有证据表明，各州都致力于维持其项目，并确保通过诊断进行初步筛查所需的资金。联邦资金的使用目前是有限的；然而，如果发布统一新生儿筛查小组的国家建议，提供专门的联邦资金的压力可能会增加。
BACKGROUND. Financing for newborn screening is different from virtually all other public health programs. All except 5 screening programs collect fees as the primary source of program funding. A fee-based approach to financing newborn screening has been adopted by most states, to ensure consistent funding for this critical public health activity.METHODS. Two types of data are reported here, ie, primary data from a survey of 37 state public health agencies and findings from exploratory case studies from 7 states.RESULTS. Most of the programs that participated in this survey (73%) reported that their newborn screening funding increased between 2002 and 2005, typically through increased fees and to a lesser extent through Medicaid, Title V Maternal and Child Health Services Block Grant, and state general revenue funding. All of the responding states that collect fees (n = 31) use such funds to support laboratory expenses, and most (70%) finance short-term follow-up services and program management. Nearly one half (47%) finance longer-term follow-up services, case management, or family support beyond diagnosis. Other states (43%) finance genetic or nutritional counseling and formula foods or treatment.CONCLUSIONS. Regardless of the source of funds, the available evidence indicates that states are committed to maintaining their programs and securing the necessary financing for the initial screening through diagnosis. Use of federal funding is currently limited; however, pressure to provide dedicated federal funding would likely increase if national recommendations for a uniform newborn screening panel were issued.