Families and intellectual disability
Families and intellectual disability
复制标题
DOI：
10.1097/01.yco.0000179488.92885.e8
复制
发表时间：
2005-09-01
影响因子：
6.9
通讯作者：
Paczkowski, E
中科院分区：
文献类型：
--
作者：
Blacher, J;Neece, CL;Paczkowski, E
本综述包括了最近关于有智力障碍的儿童或成年后代的家庭功能的研究。目的是扩大对家庭研究的审查，从适应/应对的角度考虑更多的背景因素（环境、文化、服务提供）。研究继续关注父母的健康状况，有智力残疾儿童的父母仍然表现出压力和抑郁的迹象。然而，越来越多的证据表明，儿童行为问题或特殊综合症与父母较差的幸福感有更直接的关系。另一方面，父母的行为也会影响孩子的行为，研究强调了父母的环境和动态的重要性。干预的重点是儿童行为以及减轻父母的压力。最后，从生活质量和生活安排的研究中可以明显看出，父母在患有智力残疾的年轻人的一生中一直参与其中。家庭成员的幸福仍然是一个令人感兴趣的领域，特别强调兄弟姐妹和文化背景。在家庭研究中，方法的严谨性也在继续增加，有不同的方法代表。然而，仍然需要发展理论模型，在其中框架未来的研究主题，如兄弟姐妹，以及对家庭的消极和积极影响。
Purpose of review This review includes recent research pertaining to family functioning when there is a child or adult offspring with intellectual disability. The purpose was to broaden the examination of families research from an adjustment/coping perspective to consideration of more contextual factors (environment, culture, service delivery).Recent findings Studies continue to focus on parental well being, with parents of children with intellectual disability still showing evidence of stress and depression. Increasing evidence is accruing, however, that child behavior problems or specific syndrome more directly relate to poorer parental well being. On the other hand, parenting behaviors also contribute to child behaviors, with studies highlighting the importance of parenting context and dynamics. Interventions focus on child behaviors as well as on stress reduction for parents. Finally, the continued involvement of parents across the lifespan of their young adult with intellectual disability is apparent from studies of quality of life and living arrangements.Summary The well being of family members continues to be an area of interest, with special emphasis on siblings and cultural context. Methodological rigor in families research also continues to increase, with diverse methodologies represented. There is still a need, however, for the development of theoretical models within which to frame future research on topics such as siblings, as well as both negative and positive impact on families.