"I was so worried about every drop of milk" - feeding problems at home are a significant concern for parents after major heart surgery in infancy
"I was so worried about every drop of milk" - feeding problems at home are a significant concern for parents after major heart surgery in infancy
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DOI：
10.1111/mcn.12302
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发表时间：
2017-04-01
影响因子：
3.4
通讯作者：
Wray, Jo
中科院分区：
文献类型：
--
作者：
Tregay, Jenifer;Brown, Katherine;Wray, Jo
在英国，患有复杂先天性心脏病的小婴儿的手术数量逐年增加，更多的人在最初的手术中幸存下来。然而，即使手术成功，其中一些婴儿出院回家时仍然很脆弱。本研究的目的是了解父母在照顾有复杂需求的孩子时的经验。我们进行了一项质性研究，采用半结构化访谈对20名儿童的父母进行访谈
Increasing numbers of operations in small infants with complex congenital heart disease are being carried out in the UK year on year, with more surviving the initial operation. However, even after successful surgery some of these infants remain fragile when they are discharged home. The aim of the study was to elicit parents' experiences of caring for a child with complex needs after major congenital heart surgery. We conducted a qualitative study involving semi-structured interviews with parents of 20 children (aged