Older Adults with Dementia in an Online Forum: A Preliminary Analysis
Older Adults with Dementia in an Online Forum: A Preliminary Analysis
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在线论坛中患有痴呆症的老年人：初步分析
DOI：
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发表时间：
2019
期刊：
影响因子：
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通讯作者：
Gillian R. Hayes
中科院分区：
文献类型：
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作者：
Jazette Johnson;Rebecca W. Black;Yunan Chen;Gillian R. Hayes
社会计算为老年人提供了各种挑战和机遇。特别是，在最近诊断出痴呆症后，老年人有时会参与在线社区。在这项工作中，我们试图了解这些成年人在网上做什么，目前的解决方案是否以及如何满足他们的需求，以及协作系统可以做些什么来更好地支持新诊断的人。我们分析了来自痴呆症患者论坛的57个帖子。我们的研究结果表明，用户参与这些论坛作为一种自我表达的手段，与他人联系，并确定必要的资源。在寻求这些类型的信息和支持时，痴呆症患者有时会提供私人和脆弱的信息以及直接的医疗数据，通常是以违反HIPPA标准的可识别方式。支持需求和共享信息之间的紧张关系为CSCW研究人员带来了有趣的新挑战和机遇。
Social computing provides a variety of challenges and opportunities for people who are aging. In particular, following a recent diagnosis of dementia, older adults sometimes engage in online communities. In this work, we sought to understand what these adults are doing online, whether and how current solutions meet their needs, and what collaborative systems might be able to do to support the newly diagnosed better. We analyzed 57 posts from a forum for persons with dementia. Our findings indicate that users engaged with these forums as a means for self-expression, to connect with others, and to identify necessary resources. While seeking these types of information and support, persons with dementia sometimes provide private and vulnerable information as well as direct medical data, often in identifiable ways that would violate HIPPA standards. The tensions between need for support and the information shared presents interesting new challenges and opportunities for CSCW researchers.