Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis.
Co-Design of a Disease Activity Based Self-Management Approach for Patients with Rheumatoid Arthritis.
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DOI：
10.31138/mjr.32.1.21
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发表时间：
2021-03
影响因子：
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通讯作者：
Hulscher MEJL
中科院分区：
文献类型：
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作者：
Spijk-de Jonge MJ;Manders SHM;Huis AMP;Elwyn G;van de Laar MAFJ;van Riel PLCM;Hulscher MEJL
在基于患者水平障碍的日常临床实践中，系统开发干预措施以改善类风湿关节炎（RA）的疾病活动管理。自我管理策略是在与所有利益相关者共同设计的过程中，通过循序渐进的方法制定的，并根据疾病活动性解决了RA管理的患者水平障碍。由此产生的DAS-通过策略包括决策支持信息和指导，由一个专门的风湿病护士。它旨在增加患者对DAS 28的认识，使患者能够参与疾病管理，并改善患者的用药信念。决策支持信息包括信息传单和患者持有的记录。护士个性化的信息，刺激病人沟通疾病的活动，并提供问题或额外的支持的机会。利益相关者认为DAS通行证战略很有帮助。它可以用来改善RA的日常临床实践。我们的系统方法可用于提高患者对其他RA相关主题的知识和自我管理。此外，它还可用于改善其他慢性疾病的管理。因此，我们提供了我们的方法的详细描述，以帮助那些有兴趣制定一个以证据为基础的战略，教育和赋权患者。
The systematic development of an intervention to improve disease activity-based management of rheumatoid arthritis (RA) in daily clinical practice that is based on patient-level barriers. The self-management strategy was developed through a step-wise approach, in a process of co-design with all stakeholders and by addressing patient level barriers to RA management based on disease activity. The resulting DAS-pass strategy consists of decision supportive information and guidance by a specialised rheumatology nurse. It aims to increase patients’ knowledge on DAS28, to empower patients to be involved in disease management, and to improve patients’ medication beliefs. The decision supportive information includes an informational leaflet and a patient held record. The nurse individualises the information, stimulates patients to communicate about disease activity, and offers the opportunity for questions or additional support. The DAS-pass strategy was found helpful by stakeholders. It can be used to improve RA daily clinical practice. Our systematic approach can be used to improve patient knowledge and self-management on other RA related topics. Also, it can be used to improve the management of other chronic conditions. We therefore provide a detailed description of our methodology to assist those interested in developing an evidence-based strategy for educating and empowering patients.