Involving older people with dementia and their carers in designing computer based support systems: some methodological considerations
Involving older people with dementia and their carers in designing computer based support systems: some methodological considerations
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DOI：
10.1007/s10209-008-0129-9
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发表时间：
2009-04-01
影响因子：
2.4
通讯作者：
Vaughan, Phillip
中科院分区：
文献类型：
--
作者：
Astell, Arlene;Alm, Norman;Vaughan, Phillip
老年痴呆症患者是一个特别具有挑战性的用户群体，他们需要参与设计可以帮助他们的交互式系统。让痴呆症患者的家庭护理人员参与进来也可能很困难，因为他们自己很可能年纪也大了，并且对技术不确定。有偿护理人员虽然年轻，但可能不清楚技术的好处，对自己将技术融入工作的能力缺乏信心。在过去的7年里，本文的作者与痴呆症患者，他们的家人和专业护理人员密切合作，开发和评估多媒体计算机系统，以支持痴呆症患者和护理人员之间的沟通。为了实现这一目标，解决了一些用户参与的问题，从与痴呆症患者一起工作的法律的和道德考虑到工作人员不愿意为研究项目增加工作量。此外，开发和进行评估并征求患有工作记忆障碍以及其他认知和社交困难的痴呆症患者的意见成为一个中心问题。在这个项目中探索了各种方法，这在本文中进行了描述，包括熟悉整个团队与痴呆症所带来的独特困难，参与者的同意，以及如何衡量享受，参与和使用观察联合互动的不断确认。
Older people with dementia are a particularly challenging user group to involve in the process of designing interactive systems that could assist them. It may also be difficult to involve family caregivers of people with dementia, as they are most likely to be older themselves and uncertain about technology. Paid care staff, whilst younger, may be unclear about the benefits of technology and lack confidence in their ability to incorporate it into their work. Over the past 7 years, the authors of this paper have worked closely with people with dementia, their families and professional care staff to develop and evaluate a multimedia computer system to support communication between people with dementia and caregivers. To achieve this, a number of user involvement issues were addressed, ranging from legal and ethical considerations of working with people with dementia to the reluctance of hard-pressed staff to add to their workload for a research project. In addition, developing and conducting evaluations and eliciting the views of people with dementia who have working memory impairment plus additional cognitive and social difficulties emerged as a central issue. A variety of approaches were explored within this project, which are described in this paper, including familiarizing the whole team with the unique difficulties posed by dementia, continuous confirmation of participants' consent, and ways to measure enjoyment, engagement, and joint interaction using observation.