Information Infrastructure for Consumer Health A Health Information Exchange Stakeholder Study
Information Infrastructure for Consumer Health A Health Information Exchange Stakeholder Study
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DOI：
10.1016/j.amepre.2011.01.010
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发表时间：
2011-05-01
影响因子：
5.5
通讯作者：
Esterhay, Robert J.
中科院分区：
文献类型：
--
作者：
Thornewill, Judah;Dowling, Alan F.;Esterhay, Robert J.
背景：全人群健康信息捕获和传输的基础设施开始在美国出现。然而，仍然缺少的基本基础设施组件是有效的健康信息交换(HIE)。健康档案银行(HRB)是实现HIE的几种可能方法之一。这种方法可行吗？如果是这样的话，要取得成功必须满足哪些条件？目的：这项研究于2007-2008年进行，探索了12个医疗保健利益相关者群体及其服务的消费者在美国130万人口的社区行动研究背景下与人力资源管理局相关的兴趣、关切、利益、支付偏好、设计要求、价值主张和挑战。通过23个焦点小组、13个网络调查、消费者电话调查(非分层随机抽样)和后续会议收集和分析数据。利用多渠道沟通战略实现了代表目标群体的领导人的招聘目标。通过数据三角测量确定了关键主题。结果：结果包括12个利益相关者群体和消费者的关键主题、设计要求、价值主张和挑战。结论：本研究为开发消费者许可驱动的、财务可持续的社区HRB模式提供了一个框架。然而，要使这种模式蓬勃发展，它就需要成为全国范围内的高等教育机构网络的一部分，具有兼容的人力资源管理办法，能够克服许多挑战。(Am J Prev Med 2011；40(5S2)：S123-S133)(C)2011年美国预防医学杂志
Background: An enabling infrastructure for population-wide health information capture and transfer is beginning to emerge in the U. S. However, the essential infrastructure component that is still missing is effective health information exchange (HIE). Health record banks (HRBs) are one of several possible approaches to achieving HIE. Is the approach viable? If so, what requirements must be satisfied in order for it to succeed?Purpose: The research, conducted in 2007-2008, explored HRB-related interests, concerns, benefits, payment preferences, design requirements, value propositions, and challenges for 12 healthcare stakeholder groups and the consumers they serve in a U. S. metropolitan area of 1.3 million people.Methods: A mixed-methods design was developed in a community action research context. Data were gathered and analyzed through 23 focus groups, 13 web surveys, a consumer phone survey (nonstratified random sample) and follow-up meetings. Recruiting goals for leaders representing targeted groups were achieved using a multi-channel communications strategy. Key themes were identified through data triangulation. Then, requirements, value propositions and challenges were developed through iterative processes of interaction with community members.Results: Results include key themes, design requirements, value propositions, and challenges for 12 stakeholder groups and consumers.Conclusions: The research provides a framework for developing a consumer permission-driven, financially sustainable, community HRB model. However, for such a model to flourish, it will need to be part of a nationwide network of HIEs with compatible HRB approaches able to overcome a number of challenges. (Am J Prev Med 2011;40(5S2):S123-S133) (C) 2011 American Journal of Preventive Medicine