Internet Message Boards for Pregnancy Loss: Who's On-Line and Why?
Internet Message Boards for Pregnancy Loss: Who's On-Line and Why?
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DOI：
10.1016/j.whi.2011.07.006
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发表时间：
2012-01-01
影响因子：
3.2
通讯作者：
Palladino, Christie Lancaster
中科院分区：
文献类型：
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作者：
Gold, Katherine J.;Boggs, Martha E.;Palladino, Christie Lancaster
背景：怀孕失败是常见的，但其重要性往往被家人、朋友和社区最小化，使失去亲人的父母无法满足支持需求。本研究旨在描述人口统计，使用模式，以及参与互联网妊娠损失支持小组的妇女的感知利益。方法：我们请求允许在大型和活跃的美国互联网留言板上发布一项匿名网络调查，调查对象是流产和死产妇女。该研究有目的地对死产地点进行了抽样调查，包括封闭式和开放式问题。密歇根大学机构审查委员会批准了这项研究。用双变量分析对封闭式问题进行总结和评价。我们使用迭代编码过程对开放式数据进行定性分析，以确定关键主题。结果：在被调查的62个网站中，有15个允许在18个不同的留言板上发布调查结果。我们收集了1039份调查，其中1006份是完整的，符合分析条件。女性通常是白人，受过良好教育，经常使用。他们指出，留言板帮助他们在失去亲人和悲伤时感到不那么孤立，他们欣赏互联网交流的独特之处，如方便、访问、匿名和隐私。流产留言板是对许多丧亲母亲提供支持的一个重要方面。尽管非洲裔美国妇女死产的风险更高，但她们在网上的代表性似乎大大不足。结论：互联网留言板在为流产和死产妇女提供支持方面具有独特的功能。这些好处往往与传统的面对面丧亲支持有很大不同。雅各布斯妇女健康研究所版权所有(C) 2012年。Elsevier Inc.出版。
Background: Pregnancy loss is common, but its significance is often minimized by family, friends, and the community, leaving bereaved parents with unmet need for support. This study sought to describe demographics, usage patterns, and perceived benefits for women participating in Internet pregnancy loss support groups.Methods: We requested permission to post an anonymous Internet survey on large and active United States Internet message boards for women with miscarriages and stillbirths. The study purposefully oversampled stillbirth sites and included both closed-and open-ended questions. The University of Michigan Institutional Review Board approved the study. Closed-ended questions were summarized and evaluated with bivariate analysis. We performed a qualitative analysis of open-ended data using an iterative coding process to identify key themes.Results: Of 62 sites queried, 15 granted permission to post the survey on 18 different message boards. We collected 1,039 surveys, of which 1,006 were complete and eligible for analysis. Women were typically white, well educated, and frequent users. They noted message boards helped them to feel less isolated in their loss and grief and they appreciated unique aspects of Internet communication such as convenience, access, anonymity, and privacy. Pregnancy loss message boards are an important aspect of support for many bereaved mothers. African-American women seem to be substantially underrepresented on-line despite being at higher risk for stillbirth.Conclusion: Internet message boards serve a unique function in providing support for women with miscarriage and stillbirth. The benefits are often significantly different from those encountered in traditional face-to-face bereavement support. Copyright (C) 2012 by the Jacobs Institute of Women's Health. Published by Elsevier Inc.