Examining the Relationship Between Genetic Counselors' Attitudes Toward Deaf People and the Genetic Counseling Session
Examining the Relationship Between Genetic Counselors' Attitudes Toward Deaf People and the Genetic Counseling Session
复制标题
DOI：
10.1007/s10897-009-9272-6
复制
发表时间：
2010-04-01
影响因子：
1.9
通讯作者：
Palmer, Christina G. S.
中科院分区：
文献类型：
--
作者：
Enns, Emily E.;Boudreault, Patrick;Palmer, Christina G. S.
考虑到耳聋的医学和文化观点，确定遗传咨询师对聋人的态度是否会影响耳聋基因咨询是很重要的。通过全国遗传咨询师协会招募的158名遗传咨询师完成了一项在线调查，评估了人们对聋人的态度，以及讨论和提供耳聋基因检测的特定场景的舒适度。与没有聋人/聋人朋友或在“其他”环境工作的受访者相比，有聋人/聋人朋友或在产前或儿科环境工作的受访者对聋人的态度更为积极。在两种情况下，对聋人的积极态度与谈论基因检测的舒适度相关；并与更高的舒适度相关，为文化上失聪的客户提供基因检测，希望有一个失聪的孩子。在涉及听力或非文化聋人来访者的情景中，态度和舒适度不相关。这些结果表明，遗传咨询师的态度会影响文化聋人来访者的信息提供和决策过程。建议在遗传咨询培训项目中加入文化敏感性讲习班，与文化聋人进行个人互动。还提供了促进个人互动的其他建议。
Given the medical and cultural perspectives on deafness it is important to determine if genetic counselors' attitudes toward deaf people can affect counseling sessions for deafness genes. One hundred fifty-eight genetic counselors recruited through the National Society of Genetic Counselors Listserv completed an online survey assessing attitudes toward deaf people and scenario-specific comfort levels discussing and offering genetic testing for deafness. Respondents with deaf/Deaf friends or who work in prenatal or pediatric settings had more positive attitudes toward deaf people than those without deaf/Deaf friends or those working in 'other' settings. More positive attitudes toward deaf people correlated with higher comfort level talking about genetic testing for the two scenarios involving culturally Deaf clients; and correlated with higher comfort level offering genetic testing to culturally Deaf clients wishing to have a deaf child. Attitudes and comfort level were not correlated in the scenarios involving hearing or non-culturally deaf clients. These results suggest that genetic counselors' attitudes could affect information provision and the decision making process of culturally Deaf clients. Cultural sensitivity workshops in genetic counseling training programs that incorporate personal interactions with culturally Deaf individuals are recommended. Additional suggestions for fostering personal interactions are provided.