The cost and benefits of employment: A qualitative study of experiences of persons with multiple sclerosis
The cost and benefits of employment: A qualitative study of experiences of persons with multiple sclerosis
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DOI：
10.1016/s0003-9993(03)00614-2
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发表时间：
2004-02-01
影响因子：
4.3
通讯作者：
Amtmann, D
中科院分区：
文献类型：
--
作者：
Johnson, KL;Yorkston, KM;Amtmann, D
目的：为了更好地了解多发性硬化症（MS）患者在Workplace.Design中所面临的益处和障碍：包括一系列semi-structured interviews.Setting：Community-based setting.Participants：14名女性和2名男性MS患者居住在社区，他们在接受采访时被雇用或最近被雇用。主要结局指标：与就业有关的个人经历的帐户。结果：出现了四个主题：工作的成本效益经济;疲劳和认知变化;工作场所的压力;和解决障碍的住宿。虽然参与者高度重视工作，但他们也意识到受雇的代价。失业或换工作的后果被认为是消极的，似乎是压力。对于多发性硬化症患者来说，就业既有成本，也有显著的好处。在工作场所和修改的角色和责任在家里使个人继续working.Conclusions：卫生保健提供者必须考虑的复杂性和时间的决定，MS的人继续或离开就业之前，建议采取任何行动。确定干预的关键时期，以稳定这种成本效益平衡是理解就业和MS的问题的关键下一步。（C）2004年由美国康复医学大会和美国物理医学与康复学会。
Objective: To attain a better understanding of the benefits and barriers faced by persons with multiple sclerosis (MS) in the workplace.Design: Qualitative research methodology comprising a series of semistructured interviews.Setting: Community-based setting.Participants: Fourteen women and 2 men with MS living in the community who were employed or recently employed at the time of inter-views.Interventions: Not applicable. Main Outcome Measure: Accounts of personal experiences related to employment.Results: Four themes emerged: the cost-benefit economy of working; fatigue and cognitive changes; stress in the workplace; and accommodations made to address barriers. Although participants valued work highly, they were also aware of the cost of being employed. The consequences of unemployment or changing jobs were considered negative and appeared stressful. For persons with MS, employment had both costs and significant benefits. Accommodations in the workplace and modifications of roles and responsibilities at home made it possible for individuals to continue working.Conclusions: Health care providers must consider the complexity and timing of decisions by people with MS to continue or leave employment before recommending either action. Identifying critical periods of intervention to stabilize this cost-benefit balance is a critical next step for understanding issues of employment and MS. (C) 2004 by the American Congress of Rehabilitation Medicine and the American Academy of Physical Medicine and Rehabilitation.