Designing Patient-Centered Personal Health Records (PHRs): Health Care Professionals' Perspective on Patient-Generated Data
Designing Patient-Centered Personal Health Records (PHRs): Health Care Professionals' Perspective on Patient-Generated Data
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DOI：
10.1007/s10916-012-9861-z
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发表时间：
2012-12-01
影响因子：
5.3
通讯作者：
Zhang, Yan
中科院分区：
文献类型：
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作者：
Huba, Nicholas;Zhang, Yan
目前，患者不仅想要访问他们的医疗保健提供者保存的各种医疗记录，而且他们也愿意成为管理自己的健康信息和他们所护理的人的健康信息的积极参与者。个人健康记录是为了帮助满足这一需求而开发的。卫生保健专业人员在成功采用PHR方面发挥了重要作用。然而，我们缺乏对不同医护人员对私营医疗机构的意见的全面了解，包括私营医疗机构如何适应现有的医疗制度。这项探索性研究的目的是从卫生保健专业人员的角度调查PHR。访问了21名来自10个不同专业的从业者。结果表明，尽管PHR对研究参与者来说仍然是一个新概念，但他们中的大多数确实重视患者提供的信息，并建议患者保留此类记录。不同专业的参与者倾向于寻找不同类型的信息，以支持他们的工作和支持知识发现的方式提供信息。参与者也表达了共享患者信息的需要，但对共享有各种担忧。讨论了研究结果对未来PHR系统设计的影响。
Currently, patients not only want access to various medical records their health care providers keep about them, but they also are willing to become active participants in managing their own health information and the health information of the ones they care for. Personal health records were developed to help fulfill this need. Health care professionals are instrumental in the successful adoption of PHRs. Nevertheless, a full understanding of different health care practitioners' views of PHRs, including how PHRs could fit into the existing health care system, is lacking. The purpose of this exploratory study is to investigate PHRs from the perspective of health care professionals. Twenty-one practitioners with 10 different specialties were interviewed. The results suggest that although PHRs were still a novel concept to the study participants, a majority of them did value information provided by patients and would recommend that patients keep such records. Participants with different specialties tended to look for different types of information to be included in PHRs, and wished the information to be presented in ways that supported their work, as well as supported knowledge discovery. The participants also expressed a need to share patient information, but had various concerns about sharing. The implications of the results of the study in regard to the design of future PHR systems are discussed.