Caregiving for the terminally ill: at what cost?
Caregiving for the terminally ill: at what cost?
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DOI：
10.1191/0269216305pm1053oa
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发表时间：
2005-01-01
影响因子：
4.4
通讯作者：
Hudson, PL
中科院分区：
文献类型：
--
作者：
Aoun, SM;Kristjanson, LJ;Hudson, PL
本文献回顾揭示了家庭姑息照顾者的身体和心理疾病的性质和程度，以及经济上的劣势，作为他们承担责任的直接结果。研究表明，向接受姑息治疗的个人提供支持的护理人员报告说，他们对信息、通信、服务提供和保健及社区服务的支持的需求没有得到满足。在这篇文献综述中强调了三组挑战，这有助于解释为什么家庭姑息照顾者的需求在很大程度上得不到满足：（一）寻求帮助的障碍;（二）缺乏以研究为基础的干预措施，重点是减少姑息治疗的负面影响;（三）一些障碍，以有效的政策和服务的家庭照顾者的发展。此外，来自护理人员的应邀提交的材料呼应并证实了文献中报告的问题。建议加强照顾者的支持概述。
This literature review exposes the nature and extent of physical and psychosocial morbidity and economic disadvantage, home palliative caregivers suffer as a direct result of their caregiving role. Research has demonstrated that caregivers providing support to individuals receiving palliative care report unmet needs for information, communication, service provision and support from health and community services. Three sets of challenges are highlighted in this literature review which help explain why the needs of home palliative caregivers are largely unmet: (i) barriers to seeking help; (ii) a dearth of research-based interventions focused on reducing the negative aspects of caregiving; and (iii) a number of impediments to effective policy and service development for family caregivers. Furthermore, invited submissions from caregivers echoed and confirmed the issues reported in the literature. Recommendations for enhancing caregiver support are outlined.