The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research
The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research
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DOI：
10.1080/15265161.2023.2207502
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发表时间：
2023-05-19
影响因子：
13.4
通讯作者：
Henderson, Gail E.
中科院分区：
文献类型：
--
作者：
Conley, John M.;Cadigan, R. Jean;Henderson, Gail E.
本文分析了影响全球基因组编辑治理辩论的五个组织的活动，以评估当前的公共参与(PE)方法。我们将每个小组的建议与各自的实践进行比较。他们都建议广泛接触公众，但他们的做法各不相同，既有由科学家、专家和民间社会团体主导的专家驱动的模式，也有以与当地公民进行双向磋商为特色的公民商议驱动的模式，以及结合了两种方法的要素的混合模式。只有一个群体从事私募股权投资，寻求社区视角来促进公平。在大多数情况下，私募股权投资只记录最直言不讳的群体已经广为人知的观点，因此不太可能产生更公正或公平的进程或政策结果。我们对当前形式的私募股权投资的优势、劣势和可能性的探索表明，需要重新考虑“公共”和“参与”。
This paper analyses the activities of five organizations shaping the debate over the global governance of genome editing in order to assess current approaches to public engagement (PE). We compare the recommendations of each group with its own practices. All recommend broad engagement with the general public, but their practices vary from expert-driven models dominated by scientists, experts, and civil society groups to citizen deliberation-driven models that feature bidirectional consultation with local citizens, as well as hybrid models that combine elements of both approaches. Only one group practices PE that seeks community perspectives to advance equity. In most cases, PE does little more than record already well-known views held by the most vocal groups, and thus is unlikely to produce more just or equitable processes or policy outcomes. Our exploration of the strengths, weaknesses, and possibilities of current forms of PE suggests a need to rethink both "public" and "engagement."