Assessing end-stage renal disease patients' functioning and well-being: measurement approaches and implications for clinical practice.
Assessing end-stage renal disease patients' functioning and well-being: measurement approaches and implications for clinical practice.
复制标题
评估终末期肾病患者的功能和健康：测量方法和对临床实践的影响。
DOI：
10.1016/s0272-6386(12)80198-3
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发表时间：
1994
期刊：
影响因子：
--
通讯作者：
Kutner,NG
中科院分区：
文献类型：
--
作者：
Kutner,NG
除了生存率和其他类型的临床结果之外，终末期肾病患者的功能和健康状况也是他们接受的医疗护理有效性的重要指标。此外，最大限度地提高慢性病患者的功能可以被视为二级预防。患者报告的功能和幸福感表明患者在日常生活中的表现以及他们对生活的感受。卫生服务研究人员用于评估患者功能和福祉的测量方法适用于临床环境中的健康结果评估。特定于疾病和治疗的结果测量对疾病严重程度和治疗干预效果更敏感，而通用结果测量提供了跨疾病或病症的普遍性。特定测量可以提供有关临床上有意义的变化的数据，而通用测量有助于表明这些结果在患者日常生活中的重要性。使用两种类型的患者报告的测量以及基于表现的评估，将提供有关终末期肾病患者的功能限制和残疾的基于结果的数据，并有助于为终末期肾病患者制定相关的康复方案。
Along with survival and other types of clinical outcome, the functioning and well-being that characterize end-stage renal disease patients are important indicators of the effectiveness of the medical care that they receive. In addition, maximizing functioning in chronically ill patients can be viewed as secondary prevention. Patient-reported functioning and well-being indicate how patients are doing in their daily lives and how they feel about their lives. Measurements used to assess patient functioning and well-being by health services researchers are applicable to health outcome assessment in the clinical setting. Disease- and treatment-specific outcome measurements are more sensitive to disease severity and treatment intervention effects, while generic outcome measurements provide generalizability across diseases or conditions. Specific measurements can provide data about clinically meaningful changes, and generic measurements help to indicate the significance of these outcomes in patients' daily lives. Using both types of patient-reported measurements, as well as performance-based assessments, will provide outcome-based data on end-stage renal disease patients' functional limitation and disability, and help to define relevant rehabilitation protocols for end-stage renal disease patients.