Needs of persons with dementia and their family caregivers in dementia cafes
Needs of persons with dementia and their family caregivers in dementia cafes
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DOI：
10.1007/s40520-019-01129-2
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发表时间：
2019-12-01
影响因子：
4
通讯作者：
Okata, Junichiro
中科院分区：
文献类型：
--
作者：
Fukui, Chie;Fujisaki-Sueda-Sakai, Mahiro;Okata, Junichiro
背景和目的一些研究已经显示了痴呆症咖啡馆的有效性和多样性，然而很少有学术研究发表的文章关注痴呆症患者及其家庭照顾者的需求以及所提供的服务是否满足他们的需求。本研究旨在确定日本痴呆症患者及其家庭护理人员参与痴呆症咖啡馆的需求。方法对9家痴呆咖啡馆进行访谈和参与者观察。研究参与者是痴呆症患者、他们的照顾者和痴呆症咖啡馆的工作人员。采用定性内容分析法对资料进行分析。结果与讨论共招募了24名参与者。痴呆症患者的需求被细分为五类：表达他们对自己目前状况的感受；通过考虑他们的身体和认知状况来适应；注意到其健康状况的变化；享受娱乐；并与痴呆咖啡馆内外的其他人保持联系。对家庭照顾者的需求分为四类：表达他们对照顾的焦虑、内疚和抱怨等感受；商量：商量日常生活中的困难；倾听其他家庭照顾者的经历；并与痴呆咖啡馆内外的其他人保持联系。痴呆症患者和家庭照顾者的需求部分不同。老年痴呆咖啡馆应该创造方案和舒适的环境来满足他们的不同需求。
Background and aims Several studies have shown the effectiveness and diversity of dementia cafes, whereas there are few published articles in academic research focusing on what persons with dementia and their family caregivers need and whether the services provided satisfy their needs. This study aimed to identify the needs of persons with dementia and their family caregivers participating in dementia cafes in Japan. Methods Interviews and participant observations were conducted in nine dementia cafes. Study participants were persons with dementia, their caregivers, and the staff in dementia cafes. Data were analysed using qualitative content analysis. Results and discussion A total of 24 participants were recruited. Needs for persons with dementia were subdivided into five categories: to express their feelings about their current condition; to be accommodated through consideration of their physical and cognitive status; for changes in their health conditions to be noticed; to enjoy entertainment; and to keep in touch with others inside and outside of the dementia cafe. Needs for family caregivers were subdivided into four subcategories: to express their feelings such as anxiety and guilt and complaints regarding caregiving; to consult about difficulties in daily life; to listen to other family caregivers' experiences; and to keep in touch with others inside and outside of the dementia cafe. The needs of persons with dementia and family caregivers differ partly. Conclusions Dementia cafes should create programmes and comfortable environments answering to the differences of their needs.