Relationship Between Stigma Experience and Self-Perception Related to Facial Appearance in Young Japanese Patients with Cleft lip and/or Palate
Relationship Between Stigma Experience and Self-Perception Related to Facial Appearance in Young Japanese Patients with Cleft lip and/or Palate
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DOI：
10.1177/10556656221114581
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发表时间：
2022-07
期刊：
影响因子：
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通讯作者：
A. Oka;C. Tanikawa;H. Ohara;T. Yamashiro
中科院分区：
文献类型：
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作者：
A. Oka;C. Tanikawa;H. Ohara;T. Yamashiro
目的探讨唇腭裂（CL/P）患者与面部外观相关的污名体验与自我认知的关系。设计：横断面研究。研究对象69名日本CL/P青少年（11-18岁）结果测量使用日本版的青少年生活质量量表-面部差异模块，评估与面部外观相关的耻辱体验（使用7个单一情境量表项目测量）和自我感知（使用基于30个感知项目的5个领域得分测量）。参与者被分为高和低自我感知亚组，每个领域的阈值为1个标准差。在以下两个亚组之间比较了污名经历的频率：年龄，性别，仅腭裂与其他腭裂，以及高与低自我感知。有关耻辱和所有领域的分数的反应之间的相关性进行了研究。结果16%的参与者报告经历过耻辱。15至18岁的青少年比11至14岁的青少年更经常听到别人谈论自己的脸。柱头频率没有发现性别或裂缝类型不同。在消极自我认知领域得分较高和应对技能较高的青少年中，污名经历明显更频繁。关于耻辱项目的回答与所有领域得分之间存在显著相关性（r = 0.27-0.63，p <0.05）。结论与面部外貌相关的污名经历可能会影响日本CL/P青少年对面部差异的负面自我感知以及更高的应对技能。
Objective To examine the relationship between stigma experience related to facial appearance in Japanese youths with cleft lip and/or palate (CL/P) and their self-perception. Design A cross-sectional study. Participants Sixty-nine Japanese youths with CL/P (11-18 years old) Outcome measures The participants’ stigma experience in relation to facial appearance (measured with 7 single contextual scale items) and their self-perception (measured with 5 domain scores based on 30 perceptual items) were assessed using the Japanese version of the Youth Quality of Life Instrument-Facial Differences Module. Participants were categorized into high and low self-perception subgroups with a threshold of 1 standard deviation for each domain. The frequency of stigma experiences was compared between the following 2 subgroups: age, sex, cleft palate only versus other cleft, and high versus low self-perception. Correlations between the responses regarding stigma and all domain scores were examined. Results Sixteen percent of the participants reported experiencing stigma. Hearing others say something about their face occurred significantly more frequently in youths 15 to 18 years of age than in youths 11 to 14 years of age. Stigma frequency was not found to differ by sex or cleft type. Stigma experiences were significantly more frequent for youth with higher scores across negative self-perception domains as well as higher coping skills. Significant correlations were identified between responses regarding stigma items and all domain scores (r = 0.27-0.63, p < .05). Conclusions It was found that stigma experiences related to facial appearance may influence negative self-perceptions of facial differences as well as higher coping skills among Japanese youths with CL/P.