Users evaluate LupusLine, a telephone peer counseling service
Users evaluate LupusLine, a telephone peer counseling service
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DOI：
10.1002/art.1790100407
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发表时间：
1997-08-01
影响因子：
4.7
通讯作者：
Paget, SA
中科院分区：
文献类型：
--
作者：
Horton, R;Peterson, MGE;Paget, SA
目的：通过确定使用模式和用户满意度，评估LupusLine在其试点阶段的影响。LupusLine是一项同伴咨询服务，旨在通过电话咨询提供持续的家庭情感支持。153名受访者进行了调查，使用72个项目的结构化问卷通过电话管理的访谈，分别培训和专门为此目的聘请。该问卷进行了试点测试10名志愿者与系统性红斑狼疮（SLE）和一个小组的相关卫生专业人员审查了问卷的表面validity.Results，大多数用户是女性（94.5%）谁有SLE本身（87.5%），谁打电话给服务，因为最近的变化，他们的身体功能和报告的情绪抑郁和焦虑，他们的疾病。41%的受访者给他们指定的同伴顾问打了6个或更多的电话。受访者对5项高度相关的指标表示高度满意，其中92%的呼叫者表示对服务至少有中等满意度。超过60%的受访者报告了6个“感觉”类别的变化，将这种变化归因于使用LupusLine。更少的用户报告了4个特定的行为，因为使用该服务的变化，但更多的受访者归因于变化，当他们发生时，LupusLine。基于这些初步的发现，我们认为，类似于LupusLine模型地图的电话网络能够为应对SLE复杂的、持续的心理社会挑战的人们提供实质性的益处。此外，这种志愿者干预措施的家庭可及性和低成本可能在目前的卫生保健环境中发挥越来越重要的作用。
Objective, To assess the impact of LupusLine during its pilot phase of operation by determining patterns of utilization and user satisfaction. LupusLine is a peer counseling service designed to provide ongoing emotional support from home to home by telephone appointment.Methods. One hundred fifty-three respondents were surveyed using a 72-item structured questionnaire administered over the telephone by interviewers separately trained and hired specifically for this purpose. The questionnaire was pilot tested on 10 volunteers with systemic lupus erythematosus (SLE) and a panel of related health professionals reviewed the questionnaire for face validity.Results, Most users were women (94.5%) who had SLE themselves (87.5%) and who called the service because of recent changes in their physical functioning and reported feelings of depression and anxiety about their illness. Forty-one percent of respondents made 6 or more calls to their assigned peer counselor. Respondents reported high levels of satisfaction across 5 highly correlated measures, with 92% of callers reporting at least moderate satisfaction with the service. Over 60% of respondents who reported a change in 6 ''feeling'' categories attributed this change to using LupusLine. Fewer users reported a change in 4 specific behaviors since using the service, but more respondents attributed changes, when they occurred, to LupusLine.Conclusions. Based on these initial findings, we believe that telephone networks similar to the LupusLine model map be able to offer substantial benefit to people coping with the complex, ongoing psychosocial challenges of SLE. Further, the at-home accessibility and low cost of such volunteer-based interventions may play an ever more needed role in the present health care environment.