Are Cancer Survivors Willing to Participate in Research?
Are Cancer Survivors Willing to Participate in Research?
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DOI：
10.1007/s10900-011-9374-6
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发表时间：
2011-10-01
影响因子：
5.9
通讯作者：
Cranmer, David
中科院分区：
文献类型：
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作者：
Geller, Berta M.;Mace, John;Cranmer, David
人们对癌症及其治疗的晚期和长期影响知之甚少。一个癌症幸存者登记处，包括所有类型癌症幸存者的代表性纵向队列，将有助于研究这些影响。一组研究人员，癌症幸存者和癌症登记员使用医院癌症登记处来识别1990年至2006年诊断的癌症幸存者。所有符合条件的癌症幸存者都被邀请参加癌症幸存者登记。我们描述了参与社区的方法，谁回应了邀请，谁同意参与。我们使用卡方检验，显著性水平为0.05，以评估与响应率和参与率的关联。在调整年龄影响后，我们使用逻辑回归来检查与参与的关联。Logistic回归也被用来评估那些变量的独立影响，这些变量在调整年龄后与参与率显著相关。在6031名符合条件的幸存者中，55%的人回应了邀请。在那些回答的人中，61%同意参加癌症幸存者登记，总参与率为33%。农村居住，教育程度较低，全职工作，收入较低的独立相关不参加，但婚姻状况与参与这些变量调整后。招募癌症幸存者的代表性样本参加癌症幸存者登记是非常困难的。有必要就如何使得不到充分服务的人口（农村居民、教育程度较低和收入较低）参与进来进行更多研究。
Little is known about the late and long term effects of having survived cancer and its treatments. A cancer survivor registry with a representative longitudinal cohort of survivors from all types of cancers would facilitate the study of these effects. A group of researchers, cancer survivors and cancer registrars used hospital cancer registries to identify cancer survivors diagnosed from 1990 through 2006. All eligible cancer survivors were invited to participate in a cancer survivor registry. We describe our methods for engaging the community, who responded to the invitation and who agreed to participate. We used Chi square tests with a significance level of .05 to assess associations with response and participation rates. We used logistic regression to examine associations with participation after adjustment for the effect of age. Logistic regression was also used to assess the independent effects of those variables that were significantly associated with participation after adjustment for age. Of the 6031 eligible survivors, 55% responded to the invitation. Of those who responded 61% agreed to participate in the cancer survivor registry for an overall participation rate of 33%. Rural residence, less education, full time employment, and lower income were independently related to not participating, but marital status was not associated with participation after adjustment for these variables. It is very difficult to recruit a representative sample of cancer survivors to participate in a cancer survivor registry. More research on how to engage the underserved population (rural residents, less education and lower income) is warranted.