Transitioning to Life in a Nursing Home: The Potential Role of Palliative Care.

Transitioning to Life in a Nursing Home: The Potential Role of Palliative Care.
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过渡到疗养院中的生活:姑息治疗的潜在作用。

DOI:
10.1177/0825859720904802
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发表时间:
2021-01
影响因子:
1.7
通讯作者:
Stephens CE
Stephens CE
中科院分区:
医学4区
文献类型:
--
作者:
Halifax E;Bui NM;Hunt LJ;Stephens CE

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过渡到养老院(NH)是美国140万NH居民的一件大事。大多数急性NH入院后计划康复并出院回家,但由于近70%的NH居民符合姑息治疗(PC)条件,许多人由于健康状况不佳和相关的功能和/或认知能力下降而演变为长期安置。这篇文章描述了符合NH PC资格的居民和家庭过渡到NH生活的看法。对北加州3家NHS(N=228)的居民进行了PC资格筛查。一个方便抽样的符合条件的居民和他们的家庭成员(n=28)参与了定性访谈,以探索作为一名患有严重疾病的NH居民的生活经历。数据分析采用扎根理论方法论。我们的研究从符合PC资格的居民及其家庭的角度提供了对过渡到NH的经验的见解。这些数据描述了符合PC资格的居民及其家人如何经历被排除在去NH的决定之外,一旦在NH失去自主权,如何处理他们将不会回家的意识,并描述了回家的感知障碍。PC提供的包容性和以人为中心的关怀模式自然赋予了居民和家庭成员权力。提供足够的个人电脑服务,再加上与NH文化和福利管理相关的政策变化,可以改善过渡到疗养院的体验。
Transitioning to a nursing home (NH) is a major life event for 1.4 million NH residents in the United States. Most post-acute NH admissions plan for rehabilitation and discharge home, but with nearly 70% of NH residents being palliative care (PC) eligible, many evolve into long-term placements secondary to poor health and associated decline in function and/or cognition. This article describes the perceptions of NH PC-eligible residents and families transitioning to life in a NH. Residents at 3 NHs in Northern California (N = 228) were screened for PC eligibility. A convenience sample of PC-eligible residents and their family members (n = 28) participated in qualitative interviews that explored the experience of living as a NH resident with serious illness. Data were analyzed using grounded theory methodology. Our study provides insights into the experiences of transitioning to a NH from the perspectives of PC-eligible residents and their families. These data describe how PC-eligible residents and their families experienced disempowerment as they perceived being left out of decisions to go to a NH, loss of autonomy once at the NH, dealt with the realization that they would not be going home, and described perceived barriers to going home. The inclusive and person-centered model of care that PC provides naturally empowers residents and family members. Adequate provision of PC services, together with changes in policy related to NH culture and benefit management, could improve the experience of transitioning to a nursing home.
DOI: 10.1111/jgs.14988
发表时间: 2017-11
影响因子: 6.3
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Gadbois EA;Tyler DA;Mor V
通讯作者: Mor V
DOI: 10.1177/1054773819835015
发表时间: 2020-03
影响因子: 1.7
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影响因子: 5.7
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DOI: 10.1111/1475-6773.12588
发表时间: 2016-12-01
影响因子: 3.4
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