Patient education, disease activity and physical function: can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis.
Patient education, disease activity and physical function: can we be more targeted? A cross sectional study among people with rheumatoid arthritis, psoriatic arthritis and hand osteoarthritis.
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DOI：
10.1186/ar4339
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发表时间：
2013-10-20
影响因子：
4.9
通讯作者：
Stamm TA
中科院分区：
文献类型：
--
作者：
Drăgoi RG;Ndosi M;Sadlonova M;Hill J;Duer M;Graninger W;Smolen J;Stamm TA
为了更有效地针对患者的教育需求，开发了奥地利-德国教育需求评估工具（OENAT），描述了类风湿性关节炎（RA）、银屑病关节炎（PsA）和手部骨关节炎（HOA）患者的教育需求，并探讨了教育需求与性别、疾病活动性和功能之间的关系。使用 Beaton 的跨文化改编流程，将英语 ENAT 改编为奥地利德语。通过 Rasch 分析评估内部结构有效性。描述性地总结了诊断组和患者亚组的教育需求，并探讨了它们与疾病活动和身体功能的关系。样本包括 130 名 RA、125 名 PsA 和 48 名 HOA 患者。 RA、PsA 和 HOA 的平均年龄±SD 分别为 56±14、51±11 和 64±7 岁；病程分别为11±9年、11±11年和14±9年。每个患者组中超过 70% 的人表示有兴趣接受有关其疾病的教育。在所有三组中，女性和男性的教育需求存在显着差异。在 RA 和 PsA 中，女性患者在“运动”和“情感”领域表现出明显高于男性的教育需求（RA 的 p=0.04 和 p=0.03，PsA 的 p<0.01 和 p=0.01）。 HOA 组中的女性患者在除“运动”之外的所有领域的得分均显着较高。老年银屑病关节炎患者在“疼痛”领域的得分显着高于年轻患者（p=0.05）。病程>5年的RA患者）在“运动”方面表达了更高的教育需求（p<0.01）。教育背景仅对 PsA 组有影响，基础教育的患者在“运动”和“关节炎过程”方面的得分高于受过高等教育的患者（p=0.01）。在 RA 组中，DAS28 与“运动”（r=0.24，p=0.01）、“感觉”（r=0.22，p=0.02）和“治疗”（r=0.22，p=0.03）显着相关。在 PsA 组中，所有 OENAT 域均与疾病活动性相关（DAPSA 和 CDAI）。这项研究表明，教育需求因个人特征而异。如果考虑到性别、年龄、教育背景和病程，患者教育可能会更有针对性和有效。与疾病活动和功能的相关性表明，OENAT 可以识别“干预点”，这可能是有效患者教育的理想机会。
In order to target educational needs of patients more effectively, an Austrian-German educational needs assessment tool (OENAT) was developed, the educational needs of patients with rheumatoid arthritis (RA), psoriatic arthritis (PsA) and hand osteoarthritis (HOA) were described and the relationships between educational needs, gender, disease activity and function were explored. The English ENAT was adapted into Austrian-German using Beaton's cross-cultural adaptation process. Internal construct validity was assessed by Rasch analysis. Educational needs across diagnostic groups and subgroups of patients were summarized descriptively and their relationship with disease activity and physical functioning explored. The sample comprised 130 RA, 125 PsA and 48 HOA patients. Their mean ages ± SD were 56 ± 14, 51 ± 11 and 64 ± 7 years for RA, PsA and HOA; disease duration was 11 ± 9, 11 ± 11 and 14 ± 9 years, respectively. More than 70% in each patient group expressed interest in receiving education about their disease. The educational needs differed significantly between women and men in all 3 groups. In RA and PsA, female patients expressed significantly higher educational needs than men in 'movements’ and 'feelings’ domains (p=0.04 and p=0.03 for RA and p<0.01 and p=0.01 for PsA). Female patients in the HOA group had significantly higher scores on all domains except for the 'movements’. Older patients with PsA scored significantly higher than their younger counterparts in the 'pain’ domain (p=0.05). RA patients with disease duration >5 years), expressed higher educational needs in 'movements’ (p<0.01). Educational background had effects in the PsA group only, patients with basic education had greater scores than those with higher education on 'movements’ and 'arthritis process’ (p=0.01). In the RA group, DAS28 correlated significantly with 'movements’ (r=0.24, p=0.01), 'feelings’ (r=0.22, p=0.02), and 'treatments’ (r=0.22, p=0.03). In the PsA group, all OENAT domains correlated with disease activity (DAPSA and CDAI). This study showed that educational needs vary with personal characteristics. Patient education may be more targeted and effective, if gender, age, educational background and disease duration are taken into account. Correlations with disease activity and function suggest that the OENAT could enable identification of 'intervention points’, which can be ideal opportunities for effective patient education.
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影响因子：
2.3
作者：
Ndosi M;Tennant A;Bergsten U;Kukkurainen ML;Machado P;de la Torre-Aboki J;Vlieland TP;Zangi HA;Hill J
通讯作者：
Hill J
影响因子：
27.4
作者：
Helliwell, PS;Taylor, WJ
通讯作者：
Taylor, WJ
影响因子：
--
作者：
ALTMAN, R;ALARCON, G;WOLFE, F
通讯作者：
WOLFE, F
影响因子：
3.4
作者：
Meesters, Jorit J. L.;Vlieland, Theodora P. M. Vliet;Ndosi, Mwidimi E.
通讯作者：
Ndosi, Mwidimi E.
影响因子：
168.9
作者：
Creamer, P;Hochberg, MC
通讯作者：
Hochberg, MC