The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease.
The influence of perceived racial bias and health-related stigma on quality of life among children with sickle cell disease.
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DOI：
10.1080/13557858.2020.1817340
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发表时间：
2022-05
影响因子：
3.1
通讯作者：
Trost Z
中科院分区：
文献类型：
--
作者：
Hood AM;Crosby LE;Hanson E;Shook LM;Lebensburger JD;Madan-Swain A;Miller MM;Trost Z
患有镰状细胞病（SCD）的个体会经历严重的健康问题，可能导致不可预测的疼痛发作和频繁的医疗保健使用。临床护理的差异可能会导致与健康有关的耻辱和种族偏见，这大多数非洲裔美国人/黑人人口。关于与健康相关的污名和种族偏见对SCD儿童健康相关生活质量（HRQOL）的影响知之甚少。在本研究中，我们评估了这些关系，并确定了人口统计学因素之间的差异（即，年龄、性别）。数据收集自8 - 16岁患有SCD的非裔美国儿童（57%男性，63% HbSS）。儿童完成了童年耻辱量表（适用于SCD），儿童和青年种族主义的儿童认知量表，以及儿科生活质量调查镰状细胞病模块。护理人员提供了人口统计信息。在第一个回归模型中，健康相关的耻辱（p = 0.007）预测HRQOL，但年龄和性别都不是显着的预测因子。在第二个回归模型中，年龄（p = 0.03）预测HRQOL，但性别和种族偏见都不是显著的预测因素。有趣的是，年龄、性别和种族偏见之间存在显著的相互作用（p = 0.02）。具体来说，年龄较大的女孩谁报告的高水平的感知种族偏见有较差的HRQOL。我们的研究强调，需要提高对SCD儿童健康相关的耻辱和种族偏见对HRQOL的影响的认识，特别是对赞同种族偏见的大龄女孩。我们的研究结果将指导未来的耻辱和偏见减少干预措施，可能满足年龄较大的SCD女孩的需求。
Individuals with sickle cell disease (SCD) experience significant health problems that may result in unpredictable pain episodes and frequent healthcare utilization. Disparities in clinical care may contribute to health-related stigma and racial bias for this majority African-American/Black population. There is less known about the influence of health-related stigma and racial bias on the health-related quality of life (HRQOL) of children with SCD. In the present study, we assessed these relationships and identified differences across demographic factors (i.e., age, gender). Data was collected from African American children with SCD aged 8 – 16 years (57% male, 63% HbSS). Children completed the Childhood Stigma Scale (adapted for SCD), the Child Perceptions of Racism in Children and Youth scale, and the Pediatric Quality of Life Inventory Sickle Cell Disease Module. Caregivers provided demographic information. In the first regression model, health-related stigma (p = .007) predicted HRQOL, but neither age nor gender were significant predictors. In the second regression model, age (p = .03) predicted HRQOL, but neither gender nor racial bias were significant predictors. Of interest, there was a significant interaction between age, gender, and racial bias (p = .02). Specifically, older girls who reported high levels of perceived racial bias had poorer HRQOL. Our study highlights the need for increased awareness about the effects of health-related stigma and racial bias on HRQOL for children with SCD, particularly for older girls who endorse racial bias. Our findings will guide future stigma and bias reduction interventions that may meet the needs of older girls with SCD.
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影响因子：
3.2
作者：
Adeyemo, Titilope A.;Ojewunmi, Oyesola O.;Akanmu, Alani S.
通讯作者：
Akanmu, Alani S.
影响因子：
4.7
作者：
Haywood, Carlton, Jr.;Diener-West, Marie;Beach, Mary Catherine
通讯作者：
Beach, Mary Catherine
影响因子：
5.5
作者：
Hsu, Lewis L.;Green, Nancy S.;Martin, Molly
通讯作者：
Martin, Molly
DOI：
10.1097/mph.0000000000000177
发表时间：
2015-03
期刊：
Journal of pediatric hematology/oncology
影响因子：
--
作者：
Beverung LM;Varni JW;Panepinto JA
通讯作者：
Panepinto JA
影响因子：
12.7
作者：
Hatzenbuehler, Mark L.;Phelan, Jo C.;Link, Bruce G.
通讯作者：
Link, Bruce G.