Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID.
Finding the 'right' GP: a qualitative study of the experiences of people with long-COVID.
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DOI：
10.3399/bjgpopen20x101143
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发表时间：
2020-12-01
期刊：
影响因子：
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通讯作者：
Chew-Graham, Carolyn A
中科院分区：
文献类型：
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作者：
Kingstone, Tom;Taylor, Anna K;Chew-Graham, Carolyn A
背景：新冠肺炎明显轻微感染的患者中，仍有持续性症状的患者比例不详，这些症状包括胸痛、呼吸急促、肌肉和关节痛、头痛、认知障碍(脑雾)和疲劳。急性后新冠肺炎(Long-CoVID)似乎是一种多系统疾病，有时发生在轻度急性疾病之后；与这些持续症状作斗争的人称自己为“长途运输者”。目的：探讨新冠肺炎感染后持续症状的患者的经历，以及他们对获得初级保健支持的看法。设计与背景：定性方法，采用半结构化访谈，探讨疑似或确诊新冠肺炎感染后持续症状患者的看法。参与者是在2020年7月至8月期间通过社交媒体招募的。方法：访谈通过电话或视频通话进行，数字录音，并在征得同意的情况下转录。采用恒定比较技术进行主题分析。有持续性症状的人参与了研究设计和数据分析。结果：本文报告了24次访谈的分析。主要主题包括：忍受和管理症状以及获得护理的“艰苦而繁重的工作”；生活在不确定、无助和恐惧中，特别是在是否有可能康复的问题上；找到“正确的”全科医生(所需的理解、同理心和支持)的重要性；以及康复和康复：什么会有帮助？结论：这项研究将提高初级保健专业人员和专员对长期COVID和人们正在经历的一系列症状的认识。患者需要他们的全科医生相信他们的症状，并表现出同理心和理解。初级保健专业人员在恢复和康复期间的持续支持至关重要。
BACKGROUND: An unknown proportion of people who had an apparently mild COVID-19 infection continue to suffer with persistent symptoms, including chest pain, shortness of breath, muscle and joint pains, headaches, cognitive impairment ('brain fog'), and fatigue. Post-acute COVID-19 ('long-COVID') seems to be a multisystem disease, sometimes occurring after a mild acute illness; people struggling with these persistent symptoms refer to themselves as 'long haulers'.AIM: To explore experiences of people with persisting symptoms following COVID-19 infection, and their views on primary care support received.DESIGN & SETTING: Qualitative methodology, with semi-structured interviews to explore perspectives of people with persisting symptoms following suspected or confirmed COVID-19 infection. Participants were recruited via social media between July-August 2020.METHOD: Interviews were conducted by telephone or video call, digitally recorded, and transcribed with consent. Thematic analysis was conducted applying constant comparison techniques. People with experience of persisting symptoms contributed to study design and data analysis.RESULTS: This article reports analysis of 24 interviews. The main themes include: the ' hard and heavy work ' of enduring and managing symptoms and accessing care; living with uncertainty, helplessness and fear, particularly over whether recovery is possible; the importance of finding the 'right' GP (understanding, empathy, and support needed); and recovery and rehabilitation: what would help?CONCLUSION: This study will raise awareness among primary care professionals, and commissioners, of long-COVID and the range of symptoms people are experiencing. Patients require their GP to believe their symptoms and to demonstrate empathy and understanding. Ongoing support by primary care professionals during recovery and rehabilitation is crucial.