"Eating plastic," "Winning the lotto," "Joining the WWW"... Descriptions of HIV/AIDS in Africa

"Eating plastic," "Winning the lotto," "Joining the WWW"... Descriptions of HIV/AIDS in Africa
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DOI:
10.1016/j.jana.2005.03.002
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发表时间:
2005-05-01
影响因子:
2
通讯作者:
Phetlhu, R
Phetlhu, R
中科院分区:
医学4区
文献类型:
--
作者:
Uys, L;Chirwa, M;Phetlhu, R

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本报告基于通过与五个非洲国家的艾滋病毒感染者或艾滋病患者以及护士进行的一系列焦点小组讨论收集的定性数据。参与者被问及人们使用哪些单词或短语来指代这种疾病和患有这种疾病的人。共有 261 名受访者参与了 40 场焦点小组讨论,数据分析确定了 290 条描述。这些描述分为七类(从最常见到最不常见):归因中性、死亡相关、身体特征相关、事实陈述、长期疾病相关和常见疾病相关。有些术语在多个国家/地区使用,而另一些术语则是某个特定国家/地区所独有的。这些描述显示了许多负面标签和信念,但也意识到这种疾病对个人的破坏性影响。
This report is based on qualitative data gathered through a series of focus group discussions with people living with HIV or AIDS and nurses in five African countries. Participants were asked which words or phrases people use to refer to the illness and to people living with the illness. A total of 261 respondents were involved in the 40 focus group discussions, and an analysis of the data identified 290 descriptions. The descriptions were classified into 7 categories, which were (from most to least common): attributional neutral, death-related, physical feature-related, factual statements, lingering illness-related, and common illness-related. Whereas some terms were used in more than one country, others were unique to a specific country. The descriptions show many negative labels and beliefs, but also an awareness of the devastating effects of the illness on individuals.