Experience of parents receiving results from a quality-of-life study in pediatric advanced cancer: A report from the PediQUEST study.
Experience of parents receiving results from a quality-of-life study in pediatric advanced cancer: A report from the PediQUEST study.
复制标题
父母接受儿科晚期癌症生活质量研究结果的经历：PediQUEST 研究报告。
DOI：
10.1002/pbc.27880
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发表时间：
2019
影响因子：
3.2
通讯作者：
Wolfe,Joanne
中科院分区：
文献类型：
--
作者：
Bilodeau,Madeline;Dussel,Veronica;Wolfe,Joanne
Little is known about the experience of parents receiving results of quality‐of‐life research in pediatric advanced cancer. The PediQUEST study participants who indicated interest in results during enrollment were mailed summarized findings and the Disseminating Quality‐of‐Life Research Questionnaire. Respondents (86%,12/14) reported feeling more than “a little” recognized, grateful, or satisfied to receive results. Concurrently, 43% (6/14) endorsed feeling more than “a little” sad, confused, or anxious. Nonetheless, 81% (13/16) prefer to be informed in the future. Although parents experience a spectrum of strong emotions, our findings suggest quality‐of‐life study results should be shared.
