Caring for someone with high-grade glioma: a time of rapid change for caregivers
Caring for someone with high-grade glioma: a time of rapid change for caregivers
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DOI：
10.1177/0269216309360118
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发表时间：
2010-07-01
影响因子：
4.4
通讯作者：
Nowak, Anna
中科院分区：
文献类型：
--
作者：
McConigley, Ruth;Halkett, Georgia;Nowak, Anna
诊断为高级别胶质瘤的患者预后不良，预期寿命有限，并且经常出现功能快速下降。照顾高级别神经胶质瘤患者特别有压力，因为照顾者不仅面临与癌症相关的治疗问题，而且还面临与照顾认知障碍患者有关的问题。本研究旨在阐明诊断为高级别胶质瘤的人的家庭照顾者的经验，并描述他们的信息和支持需求。采用扎根理论方法。21个家庭照顾者的人与高级别胶质瘤进行了采访，使用半结构化的采访指南。数据分析采用常数比较法。一个中心主题，一个快速变化的时代和两个分主题，重建关系和学习成为一个照顾者，出现了描述参与者的经验。从诊断的那一刻起，护理的特点是许多角色和生活的变化。这项研究中的护理人员报告的经历与其他癌症患者的护理人员描述的相似。这一组的不同之处在于变化的速度以及需要立即的信息和支持来帮助照顾患有高级别胶质瘤的人。
Patients diagnosed with high-grade gliomas have a poor prognosis and limited life expectancy, and often experience rapid decline in function. Caring for a patient with high-grade glioma is particularly stressful because caregivers are faced not only with cancer-related caregiving issues, but also issues relating to caring for someone with cognitive impairment. This study aimed to articulate the experiences of family caregivers of people diagnosed with high-grade glioma and to describe their information and support needs. A grounded theory method was adopted. Twenty-one family caregivers of people with high-grade glioma were interviewed using a semi-structured interview guide. A constant comparison method of data analysis was employed. A central theme, A Time of Rapid Change and two sub-themes, Renegotiating Relationships and Learning to be a Caregiver, emerged to describe the experiences of participants. Caregiving was characterised by numerous role and life changes from the moment of diagnosis. Caregivers in this study reported experiences similar to those described by caregivers of people with other cancers. What differed for this group was the rapidity of change and the need for immediate information and support to assist with caring for a person with high-grade glioma.